Literature
Here is a literature list about the ICU diary (last update October 24th, 2023). We collected more than 150 studies and reviews so far!
Studies and Reviews (ordered in date of publish)
Bergbom I, Svensson C, Berggren E, Kamsula M. (1999): Patients' and relatives' opinions and feelings about diaries kept by nurses in an intensive care unit: pilot study. Intensive Crit Care Nurs. Aug;15(4):185-91.
Rier, D. (2000): The missing voice of the critically ill: a medical sociologist's first-person account. Sociology of Health & Illness, Volume 22, Number 1, January, pp. 68-93(26)
Bäckman CG, Walther SM. (2001): Use of a personal diary written on the ICU during critical illness. Intensive Care Med. Feb;27(2):426-9.
Åkerman, E. (2002): Patient diary and follow up after intensivecare. www.nofi.info/forskning/ Patient/patdagbok/akermaneva_eng.htm, last contact on 2.5.08
Jones C, Capuzzo M, Flaatten H, et al. (2006): ICU diaries may reduce symptoms of posttraumatic stress disorder. Intensive Care Med 32 (Suppl 1): S144.
Egerod I, Schwartz-Nielsen KH, Hansen GM, Laerkner E. (2007): The extent and application of patient diaries in Danish ICUs in 2006. Nurs Crit Care. May-Jun;12(3):159-67.
Roulin MJ, Hurst S, Spirig R. (2007): Diaries written for ICU patients. Qual Health Res. Sep;17(7):893-901.
Storli SL, Lindseth A, Asplund K. (2007): “Being somewhere else” – delusion or relevant experience? A phenomenological investigation into the meaning of lived experience from being in intensive care. International Journal of qualitative studies on health and well being, 2(3), 144-159
Storli SL, Lindseth A, Asplund K. (2008): A journey in quest of meaning: a hermeneutic-phenomenological study on living with memories from intensive care. Nurs Crit Care. Mar-Apr;13(2):86-96
Robson, W. (2008): An evaluation of patient diaries in intensive care. World of critical care nursing (6) 2: 34-37
Hayes A, Kelly A (2008). patient diaries: can they off psychological help to cancer patients? Cancer Nursing practice 7(6): 25-28.
Kloos JA, Daly BJ. (2008). Effect of a Family-Maintained Progress Journal on anxiety of families of critically ill patients. Crit Care Nurs Q. 31(2):96-107
Knowles RE, Tarrier N. (2009). Evaluation of the effect of prospective patient diaries on emotional well-being in intensive care unit survivors: a randomized controlled trial. Crit Care Med. Jan;37(1):184-91
Engström A, Grip K, Hamrén M. (2009): Experiences of intensive care unit diaries: 'touching a tender wound'. Nurs Crit Care 14(2): 61-7
Storli SL, Lind R. (2009): The meaning of follow-up in intensive care: patients' perspective. Scand J Caring Sci. Mar;23(1):45-56
Egerod I, Christensen D (2009): Analysis of patient diaries in Danish ICUs: a narrative approach. Intensive Crit Care Nurs. 2009 Oct;25(5):268-77
Greco MM, Florio SD, Romani M, Romigi G Portis L. (2009). L’utilizzo dei “Diari del paziente” in Terapia Intensiva. Scenario 26 (4): 22-27.
Åkerman E, Anetth Granberg-Axéll A, Anders Ersson A, Bengt Fridlund B, Bergbom I (2010): Use and practice of patient diaries in Swedish intensive care units: a national survey. Nursing in Critical Care 15 (1): 26 – 33
Nydahl P, Knück D, Egerod I (2010): The extend and application of patient diaries in German Intensive Care Units. Connect – The World of Critical Care Nursing 7 (2): 122-126
Bäckman CG, Orwelius L, Sjöberg F, Fredrikson M, Walther SM. (2010): Long-term effect of the ICU-diary concept on quality of life after critical illness. Acta Anaesthesiol Scand. 54(6):736-43
Gjengedal E, Storli SL, Norlemann Holme A, Eskerud RS (2010): An act of caring – patient diaries in Norwegian intensive care units. Nursing in Critical Care 15 (4):176 – 184
Egerod I, Bagger C (2010): Patients' experiences of intensive care diaries-A focus group study. Intensive Crit Care Nurs. Oct;26(5):278-87
Egerod I, Christensen D. (2010) A Comparative Study of ICU Patient Diaries vs. Hospital Charts. Qualitative Health Research 22(10) 1446–1456.
Knück D, Nydahl P (2010): Einführung des Intensivtagebuches: Erste Erfahrungen sind positiv (German). Pflegen Intensiv 3 (10): 36-40.
Egerod I, Storli SL, Åkerman E. (2011). Intensive care patient diaries in Scandinavia: a comparative study of emergence and evolution. Nurs Inq. Sep;18(3):235-46
Nydahl P, Knück D, Bischoff K, Fritzsch A (2011). Evaluationsstudie Das Tagebuch war eine große Hilfe für mich (German). Pflegen Intensiv 1: 29-34
Egerod I, Christensen D, Schwartz-Nielsen KH, Ågård AS. (2011). Constructing the illness narrative: A grounded theory exploring patients’ and relatives’ use of intensive care diaries. Crit Care Med Vol. 39(9), 1922-8.
Jones C, Bäckman C, Capuzzo M, Egerod I, Flaatten H, Granja C, Rylander C, Griffiths RD; RACHEL group (2010). Intensive care diaries reduce new onset post traumatic stress disorder following critical illness: a randomised, controlled trial. Crit Care 14(5):R168. Epub 2010 Sep 15.
Garrouste-Orgeas M, Coquet I, Perier A, Timsit JF, Pochard F, Lancrin F, Philippart F, Vesin A, Bruel C, Blel Y, Angeli S, Cousin N, Carlet J, Misset B. Impact of an intensive care unit diary on psychological distress in patients and relatives Crit Care Med. 2012 Jul;40(7):2033-40.
Jones, C, Bäckman C, Griffith C. (2012). Intensive Care diaries reduce PTSD-related symptoms in relatives following critical illness. Am J Crit Care 21 (3): 172-6.
Greco MM, Portis L, Galizio M (2012). Attitudini e percezioni del personale sanitario nell’utilizzo dei Diari di Terapia Intensiva. Scenario 29 (2): 12-18.
Akerman E, Ersson A, Fridlund B, Samuelson K. Preferred content and usefulness of a photodiary as described by ICU-patients-A mixed method analysis. Aust Crit Care. 2013 Feb;26(1):29-35.
Perier A, Revah-Levy A, Bruel C, Cousin N, Angeli S, Brochon S, Philippart F, Max A, Gregoire C, Misset B, Garrouste-Orgeas M (2013). Phenomenological analysis of healthcare worker perceptions of intensive care unit diaries. Crit Care. 2013 Jan 21;17(1):R13
Egerod I, Risom SS, Thomsen T, Storli SL, Eskerud RS, Holme AN, Samuelson KA. ICU-recovery in Scandinavia: A comparative study of intensive care follow-up in Denmark, Norway and Sweden. Intensive Crit Care Nurs. 2013. In press.
Ewens B, Chapman R, Tulloch A, Hendricks JM. ICU survivors' utilisation of diaries post discharge: A qualitative descriptive study. Aust Crit Care. 2014 Feb;27(1):28-35.
Nydahl P, Bäckman CG, Bereuther J, Thelen M (2014). How much time do nurses need to write an ICU diary? Nursing in Critical Care, 19(5):222-7.19(5):222-7.
Aitken LM, Rattray J, Hull A, Kenardy JA, Le Brocque R, Ullman AJ. The use of diaries in psychological recovery from intensive care. Crit Care. 2013 Dec 18;17(6):253
Di Gangi S, Naretto G, Cravero N, Livigni S.A narrative-based study on communication by family members in intensive care unit. J Crit Care. 2013 Aug;28(4):483-9.
Garrouste-Orgeas M, Périer A, Mouricou P, Grégoire C, Bruel C, Brochon S, Philippart F, Max A, Misset B. Writing in and reading ICU diaries: qualitative study of families' experience in the ICU. PLoS One. 2014 Oct 16;9(10):e110146.
Nair R, Mitchell M, Keogh S. The extent and application of patient diaries in Australian intensive care units: A national survey. Australian Critical Care. in press
Nydahl P, Knueck D, Egerod I (2015). Extent and application of ICU diaries in Germany in 2014. Nursing in Critical Care. 20(3):155-62.
Groß, C. (2014). Diaries on intensive care units. The view of the nurses (German: Patiententagebücher auf Intensivstation. Eine Betrachtung aus Sicht der Pflegenden. In: Schiff, A. (Hg.) Familien in kritischen Situationen der klinischen Pflege. Opladen: Barbara Budrich. 165-186.)
Ullman AJ, Aitken LM, Rattray J, Kenardy J, Le Brocque R, MacGillivray S, Hull AM. Diaries for recovery from critical illness. Cochrane Database Syst Rev. 2014 Dec 9;12:CD010468
Johansson M, Hanson E, Runeson I, Wåhlin I. Family members' experiences of keeping a diary during a sick relative's stay in the intensive care unit: A hermeneutic interview study. Intensive Crit Care Nurs. 2015 Mar 5.
Engström Å, Rogmalm K, Marklund L, Wälivaara BM. Follow-up visit in an ICU: receiving a sense of coherence. Nurs Crit Care. 2015 Feb 18. doi: 10.1111/nicc.12168.
Christensen M, Probst B. Barbara's story: a thematic analysis of a relative's reflection of being in the intensive care unit. Nurs Crit Care. 2015 Mar;20(2):63-70.
Ewens BA, Hendricks JM, Sundin D. The use, prevalence and potential benefits of a diary as a therapeutic intervention/tool to aid recovery following critical illness in intensive care: a literature review. J Clin Nurs. 2015 May;24(9-10):1406-25.
Lichtenberger, D. (2015). Erfolgreich konzipieren und implementieren (German: succesful designing and implementation). Intensiv 23 (3): 140-143.
Ullman AJ, Aitken LM, Rattray J, Kenardy J, Le Brocque R, MacGillivray S, Hull AM. (2015) Intensive care diaries to promote recovery for patients and families after critical illness: A Cochrane Systematic Review. Int J Nurs Stud., in press
Heindl P, Bachlechner A (2015). Coping mit dem Intensivtagebuch (German: Coping by an ICU diary). QuPuG 1(2): 92-100.
Glimelius Petersson C, Ringdal M, Apelqvist G, Bergbom I. Diaries and memories following an ICU stay: a 2-month follow-up study. Nurs Crit Care. 2015 May 25. doi: 10.1111/nicc.12162.
Nielsen AH, Angel S. How diaries written for critically ill influence the relatives: a systematic review of the literature. Nursing in Critical Care 2015, doi: 10.1111/nicc.12158
Nielsen AH, Angel S. Relatives perception of writing diaries for critically ill. A phenomenological hermeneutical study. Nursing in Critical Care 2015, doi: 10.1111/nicc.12147
Fukuda T, Inoue T, Kinoshita Y, Yukawa T. Effectiveness of ICU Diaries: Improving “Distorted Memories” Encountered during ICU Admission. Open Journal of Nursing 2015, 5, 313-324.
Stayt LC, Seers K, Tutton L. Making sense of it: intensive care patients' phenomenological accounts of story construction. Nurs Crit Care. 2015 Nov 9. doi: 10.1111/nicc.12224.
Nielsen AH, Angel S. (2016). How diaries written for critically ill influence the relatives: a systematic review of the literature. Nursing in Critical Care.
Beg M, Scruth E, Liu V. Developing a framework for implementing intensive care unit diaries: a focused review of the literature. Aust Crit Care. 2016 Nov;29(4):224-234.
Locke M, Eccleston S, Ryan CN, Byrnes TJ, Mount C, McCarthy MS. Developing a Diary Program to Minimize Patient and Family Post-Intensive Care Syndrome. AACN Adv Crit Care. 2016 Apr-Jun;27(2):212-20.
O'Gara G, Pattison N. A qualitative exploration into the long-term perspectives of patients receiving critical care diaries across the United Kingdom. Intensive Crit Care Nurs. 2016 Jun 7
Hester M, Ingalls NK, Hatzfeld JJ. Perceptions of ICU Diary Utility and Feasibility in a Combat ICU. Mil Med. 2016 Aug;181(8):895-9.
Nielsen AH, Angel S. Consolation or confrontation when interacting through an ICU diary - A phenomenological-hermeneutical study. Intensive Crit Care Nurs. 2016 Aug 10
Heindl P, Bachlechner A, Nydahl P, Egerod I. Extent and application of patient diaries in Austria: process of continuing adaptation. Nurs Crit Care. 2016 Sep 21.
Blair KTA, BA, Eccleston SD, Binder HM, McCarthy MS. Improving the Patient Experience by Implementing an ICU Diary for Those at Risk of Post-intensive Care Syndrome. Journal of Patient Experience. Journal of Patient Experience 2017, Feb. doi 10.1177/2374373517692927
Teece A, Baker J. Thematic Analysis: How do patient diaries affect survivors' psychological recovery? Intensive Crit Care Nurs. 2017 Mar 28. pii: S0964-3397(16)30135-5.
Ednell AK, Siljegren S, Engström Å. The ICU patient diary-A nursing intervention that is complicated in its simplicity: A qualitative study. Intensive Crit Care Nurs. 2017 Feb 20
Aitken LM, Rattray J, Kenardy J, Hull AM, Ullman AJ, Le Brocque R, Mitchell M, Davis C, Castillo MI, Macfarlane B. Perspectives of patients and family members regarding psychological support using intensive care diaries: An exploratory mixed methods study. J Crit Care. 2017 Apr;38:263-268
Johansson M, Wåhlin I, Magnusson L, Runeson I, Hanson E. Family members' experiences with intensive care unit diaries when the patient does not survive. Scand J Caring Sci. 2017 May 19. doi: 10.1111/scs.12454
Scruth EA, Oveisi N, Liu V. Innovation and Technology: Electronic Intensive Care Unit Diaries. AACN Adv Crit Care. 2017 Summer;28(2):191-199.
Huynh TG, Covalesky M, Sinclair S, Gunter H, Norton T, Chen A, Yi C. Measuring Outcomes of an Intensive Care Unit Family Diary Program. AACN Adv Crit Care. 2017 Summer;28(2):179-190
Laxton, L. (2017). Implementing the ICU diary in the medical intensive care unit. SIS Quarterly Practice Connections, 2(2), 19–20.
Egerod I, Andersson AE, Fagerdahl AM, Knudsen VE. Images of suffering depicted in diaries of family caregivers in the acute stage of necrotising soft tissue infection: A content analysis. Intensive Crit Care Nurs. 2017 Aug;41:57-62.
Mikkelsen G. The meaning of personal diaries to children and families in the paediatric intensive care unit: A qualitative study. Intensive Crit Care Nurs. 2017 Nov 25
Garrouste-Orgeas M, Flahault C, Fasse L, Ruckly S, Amdjar-Badidi N, Argaud L, Badie J, Bazire A, Bige N, Boulet E, Bouadma L, Bretonnière C, Floccard B, Gaffinel A, de Forceville X, Grand H, Halidfar R, Hamzaoui O, Jourdain M, Jost PH, Kipnis E, Large A, Lautrette A, Lesieur O, Maxime V, Mercier E, Mira JP, Monseau Y, Parmentier-Decrucq E, Rigaud JP, Rouget A, Santoli F, Simon G, Tamion F, Thieulot-Rolin N, Thirion M, Valade S, Vinatier I, Vioulac C, Bailly S, Timsit JF. The ICU-Diary study: prospective, multicenter comparative study of the impact of an ICU diary on the wellbeing of patients and families in French ICUs. Trials. 2017 Nov 15;18(1):542
Schoeman T, Sundararajan K, Micik S, Sarada P, Edwards S, Poole A, Chapman M. The impact on new-onset stress and PTSD in relatives of critically ill patients explored by diaries study (The "INSPIRED" study). Aust Crit Care. 2017 Dec 15.
Strandberg S, Vesterlund L, Engström Å. The contents of a patient diary and its significance for persons cared for in an ICU: A qualitative study. Intensive Crit Care Nurs. 2017 Dec 30.
Mikkelsen G. The meaning of personal diaries to children and families in the paediatric intensive care unit: A qualitative study. Intensive Crit Care Nurs. 2018 Apr;45:25-30.
Strandberg S, Vesterlund L, Engström Å. The contents of a patient diary and its significance for persons cared for in an ICU: A qualitative study. Intensive Crit Care Nurs. 2018 Apr;45:31-36
Moi AL, Storli SL, Gjengedal E, Holme AN, Lind R, Eskerud R, Fenstad AM, Kvåle R, Halvorsen K. The provision of nurse-led follow-up at Norwegian intensive care units. J Clin Nurs. 2018 Apr 6.
Scruth EA. Intensive Care Unit Diaries: The Importance of Exploring the Literature Before Implementation. Clin Nurse Spec. 2018 Mar/Apr;32(2):59-61
Palombi di M, Boi S, Little A, Matarese M. The effectiveness of the patient's diary for the reduction of psychological disorders related to admission to intensive care. Systematic review of the literature. (Italian: L'efficacia del diario del paziente per la riduzione dei disturbi psicologici correlati al ricovero in terapia intensiva. Revisione sistematica della letteratura.) FNOPI 1 (2018).
Åkerman E. Intensive Care Unit diaries: A critical appraisal. Intensive Crit Care Nurs. 2018 Aug;47:5-6
Ewens BA, Hendricks JM, Sundin D. Surviving ICU: Stories of recovery. J Adv Nurs. 2018 Jul;74(7):1554-1563
Nydahl P, Fischill M, Deffner T, Neudeck V, Heindl P. [Diaries for intensive care unit patients reduce the risk for psychological sequelae : Systematic literature review and meta-analysis]. Med Klin Intensivmed Notfmed. 2018 Jul 11.
Kredentser MS, Blouw M, Marten N, Sareen J, Bienvenu OJ, Ryu J, Beatie BE, Logsetty S, Graff LA, Eggertson S, Sweatman S, Debroni B, Cianflone N, Arora RC, Zarychanski R, Olafson K. Preventing Posttraumatic Stress in ICU Survivors: A Single-Center Pilot Randomized Controlled Trial of ICU Diaries and Psychoeducation. Crit Care Med. 2018 Aug 16.
Nielsen AH, Angel S, Egerod I, Hansen TB. The effect of diaries written by relatives for intensive care patients on posttraumatic stress (DRIP study): protocol for a randomized controlled trial and mixed methods study. BMC Nurs. 2018 Aug 16;17:37.
Kennemar L. How ICU diaries can help patients and families. ICU Management & Practice 2018 (6). https://healthmanagement.org/c/icu/post/how-icu-diaries-can-help-patients-and-families
Levine SA, Reilly KM, Nedder MM, Avery KR. The Patient's Perspective of the Intensive Care Unit Diary in the Cardiac Intensive Care Unit. Crit Care Nurse. 2018 Aug;38(4):28-36
Åkerman E, Langius-Eklöf A. The impact of follow-up visits and diaries on patient outcome after discharge from intensive care: A descriptive and explorative study. Intensive Crit Care Nurs. 2018 Sep 18.
Ascough L, Morrell-Scott N. An audit of completion of diaries for rehabilitation in an intensive care unit. Br J Nurs. 2018 Oct 4;27(18):1054-1058
Druckenthaner M, Heindl P. (German) Application of ICU‐diaries by nurses of two Viennese Intensive Care Units – a quantitative document analysis. Klinische Pflegeforschung 2018, 4: 27‐38
Ullman A, Kenardy J. Remembering the Unforgettable: Trialing ICU Diaries in North America. Crit Care Med. 2018 Dec;46(12):2048-2050
McIlroy PA, King RS, Garrouste-Orgeas M, Tabah A, Ramanan M. The Effect of ICU Diaries on Psychological Outcomes and Quality of Life of Survivors of Critical Illness and Their Relatives: A Systematic Review and Meta-Analysis. Crit Care Med. 2018 Nov 13
Pattison N, O'Gara G, Lucas C, Gull K, Thomas K, Dolan S. Filling the gaps: A mixed-methods study exploring the use of patient diaries in the critical care unit. Intensive Crit Care Nurs. 2018 Dec 18
Herrup EA, Wieczorek B, Kudchadkar SR. Feasibility and Perceptions of PICU Diaries. Pediatr Crit Care Med. 2018 Nov 16.
Johansson M, Wåhlin I, Magnusson L, Hanson E. Nursing staff's experiences of intensive care unit diaries: a qualitative study. Nurs Crit Care. 2019 Jan 24.
Nielsen AH, Egerod I, Hansen TB, Angel S. Intensive care unit diaries: Developing a shared story strengthens relationships between critically ill patients and their relatives: A hermeneutic-phenomenological study. Int J Nurs Stud. 2019 Jan 26;92:90-96
Nielsen AH, Angel S, Egerod I, Lund TH, Renberg M, Hansen TB. The effect of family-authored diaries on posttraumatic stress disorder in intensive care unit patients and their relatives: A randomised controlled trial (DRIP-study). Aust Crit Care. 2019 Feb 19
Garrouste-Orgeas M, Flahault C, Vinatier I, Rigaud JP, Thieulot-Rolin N, Mercier E, Rouget A, Grand H, Lesieur O, Tamion F, Hamidfar R, Renault A, Parmentier-Decrucq E, Monseau Y, Argaud L, Bretonnière C, Lautrette A, Badié J, Boulet E, Floccard B, Forceville X, Kipnis E, Soufir L, Valade S, Bige N, Gaffinel A, Hamzaoui O, Simon G, Thirion M, Bouadma L, Large A, Mira JP, Amdjar-Badidi N, Jourdain M, Jost PH, Maxime V, Santoli F, Ruckly S, Vioulac C, Leborgne MA, Bellalou L, Fasse L, Misset B, Bailly S, Timsit JF. Effect of an ICU Diary on Posttraumatic Stress Disorder Symptoms Among Patients Receiving Mechanical Ventilation: A Randomized Clinical Trial. JAMA. 2019 Jul 16;322(3):229-239
Lynch F, Endacott R, Latour JM. Patient diaries: Survey of paediatric intensive care units in the United Kingdom and Ireland. Nurs Crit Care. 2019 Oct 4
Ascough L, Morrell-Scott N. An audit of completion of diaries for rehabilitation in an intensive care unit. Br J Nurs. 2018 Oct 4;27(18):1054-1058
Barreto BB, Luz M, Rios MNO, Lopes AA, Gusmao-Flores D. The impact of intensive care unit diaries on patients' and relatives' outcomes: a systematic review and meta-analysis. Crit Care. 2019 Dec 16;23(1):411
Costa VA, Padfield O, Elliott S, Hayden, P. (2019). Improving patient diary use in intensive care: A quality improvement report. Journal of the Intensive Care Society. 1-7. https://doi.org/10.1177/1751143719885295
Kredentser M, Olafson K, Sareen J. Use of an ICU Diary and Patient Posttraumatic Stress Disorder Symptoms. JAMA. 2019 Nov 26;322(20):2025
Garrouste-Orgeas M, Bailly S, Timsit JF. Use of an ICU Diary and Patient Posttraumatic Stress Disorder Symptoms-Reply. JAMA. 2019 Nov 26;322(20):2025-2026
Tavares T, Camões J, Carvalho DR, Jacinto R, Vales CM, Gomes E. Assessment of patient satisfaction and preferences with an intensive care diary. Rev Bras Ter Intensiva. 2019 May 23;31(2):164-170
Holme AN, Halvorsen K, Eskerud RS, Lind R, Storli SL, Gjengedal E, Moi AL. Nurses' experiences of ICU diaries following implementation of national recommendations for diaries in intensive care units: A quality improvement project. Intensive Crit Care Nurs. 2020 Mar 5:102828
Castillo MI, Mitchell M, Davis C, Powell M, Le Brocque R, Ullman A, Wetzig K, Rattray J, Hull AM, Kenardy J, Aitken LM. Feasibility and acceptability of conducting a partially randomised controlled trial examining interventions to improve psychological health after discharge from the intensive care unit. Aust Crit Care. 2020 Feb 26
Wang S, Xin HN, Chung Lim Vico C, Liao JH, Li SL, Xie NM, Hu RF. Effect of an ICU diary on psychiatric disorders, quality of life, and sleep quality among adult cardiac surgical ICU survivors: a randomized controlled trial. Crit Care. 2020 Mar 6;24(1):81
Melby, A.C., Litler Moi, A., Gjengedal, E., 2020. The experiences of bereaved relatives on receiving the intensive care diaries of their loved ones. Nor. J. Clin. Nursing/ Sykepleien Forsk 15, 1–17. http://refhub.elsevier.com/S0964-3397(21)00110-5/h0190
Üzar-Özçetin YS, Trenoweth S, Clark LL, Hext G, Tee S. Could therapeutic diaries support recovery in psychiatric intensivecare? British Journal of Mental Health Nursing. 2020.
Torres L, Nelson F, West G. Original Research: Exploring the Effects of a Nurse-Initiated Diary Intervention on Post-Critical Care Posttraumatic Stress Disorder. Am J Nurs. 2020;120(5):24-33. doi:10.1097/01.NAJ.0000662804.81454.66
Drumright K, Jones AC, Gervasio R, Hill C, Russell M, Boehm LM. Implementation of an Intensive Care Unit Diary Program at a Veterans Affairs Hospital. J Nurs Care Qual. 2020 Aug 18.
Sayde GE, Stefanescu A, Conrad E, Nielsen N, Hammer R. Implementing an intensive care unit (ICU) diary program at a large academic medical center: Results from a randomized control trial evaluating psychological morbidity associated with critical illness. Gen Hosp Psychiatry. 2020 Jul 2;66:96-102
Tripathy S, Acharya SP, Sahoo AK, Mitra JK, Goel K, Ahmad SR, Hansdah U. Intensive care unit (ICU) diaries and the experiences of patients' families: a grounded theory approach in a lower middle-income country (LMIC). J Patient Rep Outcomes. 2020 Jul 23;4(1):63
Nakashima H, Gallegos C. Journal Writing by Families of Critically Ill Patients: An Integrative Review. Crit Care Nurse. 2020 Oct 1;40(5):26-37.
Mickelson RS, Piras SE, Brown L, Carlile C, Drumright KS, Boehm L. The use and usefulness of ICU diaries to support family members of critically ill patients. J Crit Care. 2020 Oct 22;61:168-176
Nielsen AH, Angel S, Egerod I. Effect of relatives' intensive care unit diaries on post traumatic stress in patients and relatives (DRIP-study): A mixed methods study. Intensive Crit Care Nurs. 2020 Oct 30:102951
Nydahl P, Egerod I, Hosey MM, Needham DM, Jones C, Bienvenu OJJ. Report on the Third International Intensive Care Unit Diary Conference. Crit Care Nurse. 2020 Oct 1;40(5):e18-e25
Rogan J, Zielke M, Drumright K, Boehm LM. Institutional Challenges and Solutions to Evidence-Based, Patient-Centered Practice: Implementing ICU Diaries. Crit Care Nurse. 2020 Oct 1;40(5):47-56
Yoo HJ, Shim J. The Effect of a Multifaceted Family Participation Program in an Adult Cardiovascular Surgery ICU. Crit Care Med. 2020 Nov 11
McCartney E. Intensive Care Unit Patient Diaries: A Review Evaluating Implementation and Feasibility. Crit Care Nurs Clin North Am. 2020
Floris L, Madeddu A, Deiana V, Pasero D, Terragni P. The use of the ICU diary during the COVID-19 pandemic as a tool to enhance critically ill patient recovery. Minerva Anestesiol. 2021 Jan 12
Nydahl P, Deffner T. Use of Diaries in Intensive Care Unit Delirium Patients: German Nursing Perspectives. Crit Care Nurs Clin North Am. 2021 Mar;33(1):37-46
Brandao Barreto B, Luz M, Alves Valente do Amaral Lopes S, Goulart Rosa R, Gusmao-Flores D. Exploring Patients' Perceptions on ICU Diaries: A Systematic Review and Qualitative Data Synthesis. Crit Care Med. 2021 Apr 5. doi: 10.1097/CCM.0000000000005019
Schofield R, Dibb B, Coles-Gale R, Jones CJ. The experience of relatives using intensive care diaries: A systematic review and qualitative synthesis. Int J Nurs Stud. 2021 Mar 19;119:103927
Sansone V, Dall'Oglio I, Gesualdo F, Cancani F, Cecchetti C, Di Nardo M, Rossi A, De Ranieri C, Alvaro R, Tiozzo E, Gawronski O. Narrative diaries in pediatrics: A scoping review. J Pediatr Nurs. 2021 Feb 20:S0882-5963(21)00047-6. doi: 10.1016/j.pedn.2021.02.006
Brandao Barreto B, Luz M, do Amaral Lopes SAV, Rosa RG, Gusmao-Flores D. Exploring family members' and health care professionals' perceptions on ICU diaries: a systematic review and qualitative data synthesis. Intensive Care Med. 2021 Jun 12. doi: 10.1007/s00134-021-06443-w
Sun X, Huang D, Zeng F, Ye Q, Xiao H, Lv D, Zhao P, Cui X. Effect of intensive care unit diary on incidence of posttraumatic stress disorder, anxiety, and depression of adult intensive care unit survivors: A systematic review and meta-analysis. J Adv Nurs. 2021 Jul;77(7):2929-2941
Alexandersen I, Haugdahl HS, Stjern B, Paulsby TE, Lund SB, Haugan G. 'I want to get back!' A qualitative study of long-term critically ill patients' inner strength and willpower: Back home after long-term intensive care. J Clin Nurs. 2021 May 20. doi: 10.1111/jocn.15812
Flahault C, Trosdorf M, Sonrier M, Vioulac C, Fasse L, Timsit JF, Bailly S, Garrouste-Orgeas M. ICU Survivors Experience of ICU Diaries: An Ancillary Qualitative Analysis of the ICU Diary Study. Crit Care Explor. 2021 May 14;3(5):e0384
Iannuzzi L, Villa S, Vimercati S, Villa M, Pisetti CF, Viganò G, Fumagalli R, Rona R, Lucchini A. Use of Intensive Care Unit Diary as an Integrated Tool in an Italian General Intensive Care Unit: A Mixed-Methods Pilot Study. Dimens Crit Care Nurs. 2021 Jul-Aug 01;40(4):248-256
Negro A, Villa G, Zangrillo A, Rosa D, Manara DF. Diaries in intensive care units: An Italian qualitative study. Nurs Crit Care. 2021 May 30. doi: 10.1111/nicc.12668
Hofbauer JM, Dieplinger AM, Nydahl P. The meaning of NICU-Diaries to parents of premature children in the neonatal intensive care unit: Trust that everything will be fine. Journal of Neonatal Nursing, 2021, https://doi.org/10.1016/j.jnn.2021.06.005
Sansone V, Cancani F, Gagliardi C, Satta T, Cecchetti C, de Ranieri C, Di Nardo M, Rossi A, Dall'Oglio I, Alvaro R, Tiozzo E, Gawronski O. Narrative diaries in the paediatric intensive care unit: A thematic analysis. Nurs Crit Care. 2021 Jul 13. doi: 10.1111/nicc.12680
Galazzi A, Adamini I, Bazzano G, Cancelli L, Fridh I, Laquintana D, Lusignani M, Rasero L. Intensive care unit diaries to help bereaved family members in their grieving process: a systematic review. Intensive Crit Care Nurs. 2021 Aug 6:103121
Haruna J, Tatsumi H, Kazuma S, Kuroda H, Goto Y, Aisaka W, Terada H, Masuda Y. Using an ICU Diary to Communicate With Family Members of COVID-19 Patients in ICU: A Case Report. J Patient Exp. 2021 Jul 28;8:23743735211034094
Wang SH, Owens T, Johnson A, Duffy EA. Evaluating the Feasibility and Efficacy of a Pediatric Intensive Care Unit Diary. Crit Care Nurs Q. 2022 Jan-Mar 01;45(1):88-97
Zisopoulos G, Triliva S, Roussi P. Processing Intensive Care Unit Treatment Experiences: A Thematic Analysis of a Diary Intervention. Qual Health Res. 2021 Dec 2:10497323211055459.
Melby, A.C., Litler Moi, A., Gjengedal, E., 2020. The experiences of bereaved relatives on receiving the intensive care diaries of their loved ones. Nor. J. Clin. Nursing/ Sykepleien Forsk 15, 1–17.
Flahault C, Vioulac C, Fasse L, Bailly S, Timsit JF, Garrouste-Orgeas M. "A story with gaps": An interpretative phenomenological analysis of ICU survivors' experience. PLoS One. 2022 Mar 3;17(3):e0264310. doi: 10.1371/journal.pone.0264310.
Haakma T, Tieben R, Sleven B, Buise M, van Mol M. Experiences of nurses with an innovative digital diary intervention in the intensive care unit: A qualitative exploration. Intensive Crit Care Nurs. 2022 Jan 25:103197. doi: 10.1016/j.iccn.2022.103197.
Gawronski O, Sansone V, Cancani F, Di Nardo M, Rossi A, Gagliardi C, De Ranieri C, Satta T, Dall'Oglio I, Tiozzo E, Alvaro R, Raponi M, Cecchetti C. Implementation of paediatric intensive care unit diaries: Feasibility and opinions of parents and healthcare providers. Aust Crit Care. 2022 Mar 16:S1036-7314(22)00012-1
Rice RN, Qualls BW, Carey MG. Use of Diaries for Family Members of Intensive Care Unit Patients to Reduce Long-Term PTSD: A Pilot Study. J Patient Exp. 2022 Jun 3;9:23743735221105681
Eklind S, Olby K, Akerman E. The Intensive Care Unit diary — A significant complement in the recovery after intensive care. A focus group study. Intens Crit Care Nur 2022, in press https://doi.org/10.1016/j.iccn.2022.103337
Nishimura M, Toyama M, Mori H, Sano M, Imura H, Kuriyama A, Nakayama T. Providing End-of-Life Care for Dying COVID-19 Patients and their Families in Isolated Death during the Pandemic in Japan: The PRECA-C Project. Chest. 2022 Oct 15:S0012-3692(22)03998-8
Maagaard Cam Laerkner E. Writing a Diary for “You” - Intensive care nurses' narrative practices in diaries for patients: A qualitative study. International Journal of Nursing Studies 136 (2022) 104363
Gazzato A, The Effect of Intensive Care Unit Diaries on Posttraumatic Stress Disorder, Anxiety, and Depression. Dimens Crit Care Nurs. 2022 Sep-Oct;41(5):256-263
Tripathy S, Acharya SP, Sahoo AK, Hansda U, Mitra JK, Goel K, Ahmad SR, Kar N. Timing of Exposure to ICU Diaries and Its Impact on Mental Health, Memories, and Quality of Life: A Double-Blind Randomized Control Trial. Crit Care Explor. 2022 Jul 29;4(8):e0742
Taittonen L, Pärus M, Lahtinen M, Ahola J, Bartocci M. Usefulness of the Parental Electronic Diary During Medical Rounds in a NICU. J Perinat Neonatal Nurs. 2022 Jul-Sep 01;36(3):E7-E12
Krotsetis, S., Deffner, TM. & Nydahl, P. Das Intensivtagebuch – ein kommunikativer Brückenschlag. Med Klin Intensivmed Notfmed (2022). https://doi.org/10.1007/s00063-022-00967-9
Sansone V, Cancani F, Cecchetti C, Rossi A, Gagliardi C, Di Nardo M, Satta T, De Ranieri C, Dall'Oglio I, Tiozzo E, Gawronski O. Staff perception of the implementation, enablers and barriers to pediatric intensive care unit diary writing: A qualitative study. Intensive Crit Care Nurs. 2022 Dec 7:103351
Low SZQ, Kirk A, Mok YH, Lee JH. The Use and Impact of Diaries in PICUs and Neonatal ICUs: A Scoping Review. Pediatr Crit Care Med. 2023 Feb 1;24(2):e84-e90
Johnson KR, Temeyer JP, Schulte PJ, Nydahl P, Philbrick KL, Karnatovskaia LV. Aloud real- time reading of intensive care unit diaries: A feasibility study. Intensive Crit Care Nurs. 2023 Jan 25;76:103400
Galazzi A, Bruno M, Binda F, Caddeo G, Chierichetti M, Roselli P, Grasselli G, Laquintana D. Thematic analysis of intensive care unit diaries kept by staff: insights for caring. Intensive Crit Care Nurs. 2023 Jan 24;76:103392
Högvall LM, Egerod I, Herling SF, Rustøen T, Berntzen H. Finding the right words: A focus group investigation of nurses' experiences of writing diaries for intensive care patients with a poor prognosis. Aust Crit Care. 2023 Mar 16:S1036-7314(23)00029-2. doi: 10.1016/j.aucc.2023.02.002
López-Fernández E, Oviedo-Melgares L, Ordoñez-Sáez O, Belda-Hofheinz S, Ramos-Casado MV. Feasibility and acceptance of ICU diaries adapted to paediatric patients. A new tool against family post-intensive care syndrome? An Pediatr (Engl Ed). 2023 Apr;98(4):308-310
Willmeroth T. Nurses' and Parents' View on Neonatal Intensive Care Unit Diaries: A Qualitative Study and Framework Conceptualization. Am J Perinatol. 2023 May 19. doi: 10.1055/s-0043-1768959
Hu D, Ji X, Li Y, Liang Y, Chen J. Effect of intensive care unit diary on quality of life of intensive care unit survivors and their relatives: A systematic review and meta-analysis. Nurs Open. 2023 May 31. doi: 10.1002/nop2.1819
Bosco V, Froio A, Mercuri C, Sansone V, Garofalo E, Bruni A, Guillari A, Bruno D, Talarico M, Mastrangelo H, Longhini F, Doldo P, Simeone S. The Impact of an Intensive Care Diary on the Psychological Well-Being of Patients and Their Family Members: Longitudinal Study Protocol. Healthcare (Basel). 2023 Sep 19;11(18):2583
Cornelius T, Mendieta M, Cumella RM, Lopez Veneros D, Tincher IM, Agarwal S, Kronish I. Family-authored ICU diaries to reduce fear in patients experiencing a cardiac arrest (FAID fear): A pilot randomized controlled trial. PLoS One. 2023 Jul 27;18(7):e0288436.
Posters & Abstracts
Bäckman C, Johanson E, Walther SM: The intensive care diary can help the critically ill to cope with temporary memory loss and unpleasant recall. ESICM-meeting in Stockholm 1998
Jones C, Capuzzo M, Flaatten H, Backman C, Rylander C, Griffiths RD (2009). INTENSIVE CARE DIARIES MAY REDUCE LATER SYMPTOMS OF POSTTRAUMATIC STRESS DISORDER. ESICM Annual Congress, Barcelona, Spain 24-27 September 2006
Nydahl P, Knück D. Research about the ICU-diary in Germany. 5th international congress of the German sepsis society in Weimar Sept. 7-11 2011
Treusacher L, Ansorge A, Dingwerth T, Papesch I, Orlikowsky T. EINFÜHRUNG EINES INTENSIVTAGEBUCHES BEI FRÜHGEBORENEN < 31. SSW (GERMAN). 37. Jahrestagung der Gesellschaft für Neonatologie und Pädiatrische Intensivmedizin am 26. - 28. Mai 2011 im Congress Center Rosengarten in Mannheim.
Tung HT, Nordin N, Edginton T, Vizcaychipi M. (2015). Objective analysis of patient diaries used in an intensive care unit (ICU) in a London teaching hospital. Intensive Care Medicine Experimental 3(Suppl 1):A719
Cabon S, Debue AS, Charpentier J, Asselie N, Brunie C, Ericher N, Grcia J, Gidel L, Lanclas H, Pileyre A, Mira JP, Pene F. (2015). Caregivers perception of the implementation of an ICU diary. Intensive Care Medicine Experimental 3(Suppl 1):A653
Egerod I, Andersson AE, Fagerdahl A-M, Knudsen V. Experience of necrotizing soft tissue infection in the acute stage: content analysis of diaries written by close family in Denmark and Sweden (p-infect, family). Intensive Care Medicine Experimental 2016, 4(Suppl 1):A107
Aitken LM, Rattray J, Kenardy J, Hull AM, Ullman A, Le Broque R, Mitchell M, Davis C, Macfarlane B. Similarities and differences in patients' and relatives' views of information provision after ICU. Intensive Care Medicine Experimental 2016, 4(Suppl 1):A810
McCarthy, Mary; Mount, Cristin; Eccleston, Sarah: IMPROVING THE POST-INTENSIVE CARE SYNDROME PATIENT EXPERIENCE WITH AN ICU DIARY PROGRAM. Crit Care Med 2016 44 (12): 827
Nedder, Melanie; Ryan-Avery, Kathleen; Reilly, Karen; Levine, Sharon. The Patient's Perspective of the Intensive Care Unit (ICU) Diary in the Cardiac ICU. AACN National Teaching Institute in Houston, Texas, May 22-25, 2017
Van Mol M, Haakma T, Sleven B, Buise M. An exploration of nurses experiences with a digital diary in the adult intensive care unit. Nursing in Critical Care 2021 (26) S1: 12-13
Di Ruscio C., Bigiarini B., De Luca A., Bucciardini L., Meucci B. Care and Caring. (Poster). Times and Tools of Connection in the Critical Care Area. The Diary. (2023) Link
Guidelines
Easton, S. (2006): Patient diary guidelines. Sussex Critical Care Network. www.sussexcritcare.nhs.uk/profclinical/nurses/documents/patientdiaries.pdf
Egerod, I. (2008). Klinisk vejledning for patientdagbøger i intensivafdelingen (Clinical guideline for patient diaries in ICU). UCSF www.fsaio.net, Copenhagen
Storli SL, Eskerud RS, Gjengedal E, Holme AN, Synnevåg H (2011). Nasjonale anbefalinger for bruk av dagbok til pasienter ved norske intensivavdelinger (pdf) (National guidelines for the use of patient diaries in Norwegian Intensive Care Units).
Articles or related studies
Letter: Nielsen, A. H., Via-Clavero, G., Heras-la Calle, G., & Nydahl, P. (2023. Diaries for dying patients: An outlet for staff members' grief or a powerful way to humanize the intensive care unit? Intensive and Critical Care Nursing, 103417.
Schou, I, Nordvik M, Torseth AM, Fet U, Thon I, Mokkelgard M (1993): Dagbok til intensive patienter [Diary for the intensive care patients]. Nye Fagoscopet 4, 7-10
Bäckman CG (1998). Dagbok fran en intensivvardsavdelning. Landstingsvärlden 33: 16-17
Bäckman CG, Walther, SM. (1999). Kritisk tid pa intensiven dokumenteras i dagbook. Läkartidningen: 96 (5): 468-470
Storli, S. L. 2001, "Dagbok og oppfølgningssamtale som kilder til forståelse av intensivtid," in Sykepleie. Praksis og utvikling, E. Gjengedal & R. Jakobsen, eds., Cappelen Akademisk Forlag, Oslo, pp. 394-405.
Griffith RD, Jones C (2001): Filling the intensive care memory gap? Intensive Care Med 27: 344-346
Douglas SL, Daly BJ, Gordon N & Brennan PF (2002) Survival and quality of life: Short-term versus long-term ventilator patients, Critical Care Medicine 30 (12): 2655-2662
Backman, C. G. 2002, "Patient diaries in ICU," in Intensive Care Aftercare, R. D. Griffiths & C. Jones, eds., Butterworth Heinemann, Oxford, pp. 125-129.
Strahan E; McCormick J; Uprichard E; Nixon S; Lavery G (2003): Immediate follow-up after ICU discharge: establishment of a service and initial experiences. Nursing in Critical Care, Mar-Apr; 8 (2): 49-55
Storli, S.; Lind, R.; Viotti, I. (2003): Using diaries in intensive care: a method for following up patients. Connect: the world of critical care 2 (4): 103-108.
Combe D. (2005): The use of patient diaries in an intensive care unit. Nurs Crit Care. 2005 Jan-Feb;10(1):31-4
Bagger C (2006): Diary for critically ill patients [Danish]. Sygeplejersken / Danish Journal of Nursing, Dec 15; 106 (25-26): 62-5
Roulin M; Spirig R (2006): Developing a care program to better know the chronically critically ill. Intensive & Critical Care Nursing, Dec; 22 (6): 355-61
Alfheim HB; Wheeler M (2007): Psychological consequences of critical illness: what is the long term impact on patients and how can nurses help? CONNECT: The World of Critical Care Nursing; 5 (4): 89-95
Griffith, RD; Jones, C. (2007): Seven lessons from 20 years of follow-up of intensive care unit survivors. Curr Opin Crit Care 13: 508-513
Roulin MJ (2007): journal de bord à l'intention des patients. Diary for intensive care patients. [french] oxymage n°92- janvier/février 200: 10-12
Kloos JA; Daly BJ (2008): Effect of a family-maintained progress journal on anxiety of families of critically ill patients. Critical Care Nursing Quarterly, Apr-Jun; 31 (2): 96-109
Sawyer J; Wright FC; Moura SL; Maier B; Fitch MI (2008): Introducing a patient-focused care map in colorectal surgery: a pilot qualitative study of patients' and surgical oncology nurses' experiences. Canadian Oncology Nursing Journal, Winter; 18 (1): 25-8, 33
Roulin MJ (2008): Le journal de bordpour les patients des soins intensifs. Diary for intensive care patients. [french] Krankenpflege Soins infirmiers 12: 47-49
Knück, D.; Nydahl, P. (2008): Das Intensivtagebuch in Deutschland. [German] Intensiv 5 (16): 249-255
Bagger, C.; Knück, D.; Nydahl, P.(2009): Intensivtagebuch – Brücke zur Erinnerung. [German] Die Schwester Der Pfleger 1 (48): 40-44
Querques J. (2009): Can reading a diary improve psychological outcomes in the intensive care unit? Crit Care Med. Jan;37(1):356-7
Jones, C. (2009): Commentary: Knowles RE, Tarrier N (2009). Evaluation of the effect of prospective patient diaries on emotional well-being in intensive care unit survivors: a randomized control trial. Nursing in Critical Care,14 No 3
Nydahl, P; Knück, D. (2009): Intensivtagebuch – von der Idee zur Praxis. Pflegen Intensiv 3: 16-22
Samuelson KAM, Corrigan I (2009): A nurse-led intensive care after-care programme – development, experiences and preliminary evaluation. Nursing in critical care 14, 5: 254-263
Knück D, Nydahl P (2010): Einführung des Intensivtagebuches: Erste Erfahrungen sind positiv (German). Pflegen Intensiv 3 (10): 36-40
Hale M, Parfitt L, Rich T. How diaries can improve the experience of intensive care patients. Nurs Manag (Harrow). 2010 Dec;17(8):14-8.
Backman C, Jones C (2010). Implementing a diary programme on your ICU. ICU Management 11 (3): 10-16
Thomas J, Bell E. Lost days--diaries for military intensive care patients. J R Nav Med Serv. 2011;97(1):11-5.
Phillips C (2011). Use of patient diaries in critical care. Nursing Standard. 26, 11, 35-43.
Ansorge, A. (2011). Intensivtagebuch für Frühgeborene (German). Kinderkrankenschwester 12250 (30): 1-8
Arlt, Y. (2011). Das Frühchentagebuch (German). Intensiv 19(5):249–253
Bäckman C, Jones C (2011). Implementing a diary programme in your ICU. ICU management 11(3): 10-16.
Deacon KS. What Happened to Me in the ICU? The Patient's Perspective Intensive Crit Care Nurs. 2012;28:114-122
Engström Å, Nyström N, Sundelin G, Rattray J. People’s experiences of being mechanically ventilated in an ICU: A qualitative study. Intensive Crit Care Nurs (2012), http://dx.doi.org/10.1016/j.iccn.2012.07.003
Parker AM, Sricharoenchai T, Needham DM. Early Rehabilitation in the Intensive Care Unit: Preventing Impairment of Physical and Mental Health. Curr Phys Med Rehabil Rep, 2013, DOI 10.1007/s40141-013-0027-9.
Mehlhorn J, Freytag A, Schmidt K, Brunkhorst FM, Graf J, Troitzsch U, Schlattmann P, Wensing M, Gensichen J. Rehabilitation Interventions for Postintensive Care Syndrome: A Systematic Review. Crit Care Med. 2014 Jan 9. [Epub ahead of print]
Jones C, Bäckman C, Egerod I, Gibb P, Nydahl P, Storli S. Report on Third International Intensive Aftercare Conference in Norrköping, Sweden. Nurs Crit Care. 2014 Jul 15. doi: 10.1111/nicc.12108.
Ullman A, Aitken L. The use of diaries to promote recovery after critical illness. Qld Nurse. 2014 Oct;33(5):26.
Martin, Judy J. ICU Diary: The Gift of Care™.American Nurse Today;9(10). 11
Haines KJ, Denehy L, Skinner EH, Warrillow S, Berney S. Psychosocial Outcomes in Informal Caregivers of the Critically Ill: A Systematic Review. Crit Care Med. 2015 Feb 4
Parker AM, Sricharoenchai T, Raparla S, Schneck KW, Bienvenu OJ, Needham DM. Posttraumatic Stress Disorder in Critical Illness Survivors: A Metaanalysis. Crit Care Med. 2015 Feb 4.
Karnatovskaia LV, Gajic O, Bienvenu OJ, Stevenson JE, Needham DM. A holistic approach to the critically ill and Maslow's hierarchy. J Crit Care. 2015 Feb;30(1):210-1.
Svenningsen H, Langhorn L, Ågård AS, Dreyer P. Post-ICU symptoms, consequences, and follow-up: an integrative review. Nurs Crit Care. 2015 Feb 17. doi: 10.1111/nicc.12165.
Forsberg A, Engström A, Söderberg S. From reaching the end of the road to a new lighter life - people's experiences of undergoing gastric bypass surgery. Intensive Crit Care Nurs. 2014 Apr;30(2):93-100.
Warlan H, Howland L. (2015). Posttraumatic stress syndrome associated with stays in the intensive care unit: importance of nurses' involvement. Crit Care Nurse. 35(3):44-52.
Wintermann G-B, Brunkhorst FM, Petrowski K, Strauss B, Oehmichen F, Pohl M, Rosendahl J (2015). Stress Disorders Following Prolonged Critical Illness in Survivors of Severe Sepsis. Critical Care Medicine.
Egerod I, Bergboom I, Lindahl B, Lindahl B, Henricson M, Granberg-Axell A, Storli SL (2015). The patient experience of intensive care: A meta-synthesis of Nordic studies. Int. J. Nurs. Stud. (2015), http://dx.doi.org/10.1016/j.ijnurstu.2015.04.017.
Clancy O, Edginton T, Casarin A, Vizcaychipi MP (2015). The psychological and neurocognitive consequences of critical illness. ournal of the Intensive Care Society 16(3): 226-233
Karnatovskaia LV, Johnson MM, Benzo RP, Gajic O. The spectrum of psychocognitive morbidity in the critically ill: a review of the literature and call for improvement. J Crit Care. 2015 Feb;30(1):130-7.
Heyland DK, Garland A, Bagshaw SM, Cook D, Rockwood K, Stelfox HT, Dodek P, Fowler RA, Turgeon AF, Burns K, Muscedere J, Kutsogiannis J, Albert M, Mehta S, Jiang X, Day AG. Recovery after critical illness in patients aged 80 years or older: a multi-center prospective observational cohort study. Intensive Care Med. 2015 Nov;41(11):1911-20.
Bench S, Day T, Heelas K, Hopkins P, White C, Griffiths P. Evaluating the feasibility and effectiveness of a critical care discharge information pack for patients and their families: a pilot cluster randomised controlled trial. BMJ Open. 2015 Nov 27;5(11):e006852.
Gallop KH, Kerr CE, Nixon A, Verdian L, Barney JB, Beale RJ. A qualitative investigation of patients' and caregivers' experiences of severe sepsis*. Crit Care Med. 2015 Feb;43(2):296-307
Burry L, Cook D, Herridge M, Devlin JW, Fergusson D, Meade M, Steinberg M, Skrobik Y, Olafson K, Burns K, Dodek P, Granton J, Ferguson N, Jacka M, Tanios M, Fowler R, Reynolds S, Keenan S, Mallick R, Mehta S; SLEAP Investigators; Canadian Critical Care Trials Group. Recall of ICU Stay in Patients Managed With a Sedation Protocol or a Sedation Protocol With Daily Interruption. Crit Care Med. 2015 Oct;43(10):2180-90.
Castillo MI et al. Trait Anxiety But Not State Anxiety During Critical Illness Was Associated With Anxiety and Depression Over 6 Months After ICU. Crit Care Med. (2015)
Holm A, Dreyer P. Intensive care unit patients' experience of being conscious during endotracheal intubation and mechanical ventilation. Nurs Crit Care. 2015 Jul 15.
Lazaridis C. Where was I when I was in a coma? Intensive Care Med. 2015 Nov;41(11):1971-2
Netzer G, Sullivan DR. Recognizing, naming, and measuring a family intensive care unit syndrome. Ann Am Thorac Soc. 2014 Mar;11(3):435-41
Warrillow S, Farley KJ, Jones D. Ten practical strategies for effective communication with relatives of ICU patients. Intensive Care Med. 2015 Dec;41(12):2173-6.
Aitken LM, Macfarlane B, Chaboyer W, Schuetz M, Joyce C, Barnett AG. Physical Function and Mental Health in Trauma Intensive Care Patients: A 2-Year Cohort Study. Crit Care Med. 2015 Dec 9.
van Beusekom I, Bakhshi-Raiez F, de Keizer NF, Dongelmans DA, van der Schaaf M. Reported burden on informal caregivers of ICU survivors: a literature review. Crit Care. 2016 Jan 21;20(1):16.
Biehl M, Kashyap R, Ahmed AH, Reriani MK, Ofoma UR, Wilson GA, Li G, Malinchoc M, Sloan JA, Gajic O. Six-month quality-of-life and functional status of acute respiratory distress syndrome survivors compared to patients at risk: a population-based study. Crit Care. 2015 Oct 2;19:356.
Harvey MA, Davidson JE. Postintensive Care Syndrome: Right Care, Right Now…and Later. Crit Care Med. 2016 Feb;44(2):381-5.
Nadig N, Huff NG, Cox CE, Ford DW. Coping as a Multifaceted Construct: Associations With Psychological Outcomes Among Family Members of Mechanical Ventilation Survivors. Crit Care Med. 2016 Apr 8
Turnbull AE, Rabiee A, Davis WE, Nasser MF, Venna VR, Lolitha R, Hopkins RO, Bienvenu OJ, Robinson KA, Needham DM. Outcome Measurement in ICU Survivorship Research From 1970 to 2013: A Scoping Review of 425 Publications. Crit Care Med. 2016 Mar 17
Rabiee A, Nikayin S, Hashem MD, Huang M, Dinglas VD, Bienvenu OJ, Turnbull AE, Needham DM. Depressive Symptoms After Critical Illness: A Systematic Review and Meta-Analysis. Crit Care Med. 2016 May 5.
Norman BC, Jackson JC, Graves JA, Girard TD, Pandharipande PP, Brummel NE, Wang L, Thompson JL, Chandrasekhar R, Ely EW. Employment Outcomes After Critical Illness: An Analysis of the Bringing to Light the Risk Factors and Incidence of Neuropsychological Dysfunction in ICU Survivors Cohort. Crit Care Med. 2016 May 11
Huang M, Parker AM, Bienvenu OJ, Dinglas VD, Colantuoni E, Hopkins RO, Needham DM; National Institutes of Health, National Heart, Lung, and Blood Institute Acute Respiratory Distress Syndrome Network. Psychiatric Symptoms in Acute Respiratory Distress Syndrome Survivors: A 1-Year National Multicenter Study. Crit Care Med. 2016 May;44(5):954-65.
McKinley S, Fien M, Elliott R, Elliott D. Health-Related Quality of Life and Associated Factors in Intensive Care Unit Survivors 6 Months After Discharge. Am J Crit Care. 2016 Jan;25(1):52-8
Liput SA, Kane-Gill SL, Seybert AL, Smithburger PL. A Review of the Perceptions of Healthcare Providers and Family Members Toward Family Involvement in Active Adult Patient Care in the ICU. Crit Care Med. 2016 Jun;44(6):1191-7
Nikayin S, Rabiee A, Hashem MD, Huang M, Bienvenu OJ, Turnbull AE, Needham DM. Anxiety symptoms in survivors of critical illness: a systematic review and meta-analysis. Gen Hosp Psychiatry. 2016 Nov - Dec;43:23-29
Choi J, Tate JA, Donahoe MP, Ren D, Hoffman LA, Chasens ER. Sleep in family caregivers of ICU survivors for two months post-ICU discharge. Intensive Crit Care Nurs. 2016 Dec;37:11-18.
Mistraletti G, Umbrello M, Mantovani ES, Moroni B, Formenti P, Spanu P, Anania S, Andrighi E, Di Carlo A, Martinetti F, Vecchi I, Palo A, Pinna C, Russo R, Francesconi S, Valdambrini F, Ferretti E, Radeschi G, Bosco E, Malacarne P, Iapichino G; http://www.intensiva.it Investigators.. A family information brochure and dedicated website to improve the ICU experience for patients' relatives: an Italian multicenter before-and-after study. Intensive Care Med. 2016 Nov 9.
Garrouste-Orgeas M, Vinatier I, Tabah A, Misset B, Timsit JF. Reappraisal of visiting policies and procedures of patient's family information in 188 French ICUs: a report of the Outcomerea Research Group. Ann Intensive Care. 2016 Dec;6(1):82.
Davidson JE, Aslakson RA, Long AC, Puntillo KA, Kross EK, Hart J, Cox CE, Wunsch H, Wickline MA, Nunnally ME, Netzer G, Kentish-Barnes N, Sprung CL, Hartog CS, Coombs M, Gerritsen RT, Hopkins RO, Franck LS, Skrobik Y, Kon AA, Scruth EA, Harvey MA, Lewis-Newby M, White DB, Swoboda SM, Cooke CR, Levy MM, Azoulay E, Curtis JR. Guidelines for Family-Centered Care in the Neonatal, Pediatric, and Adult ICU. Crit Care Med. 2017 Jan;45(1):103-128.
Barnato AE, Schenker Y, Tiver G, Dew MA, Arnold RM, Nunez ER, Reynolds CF 3rd. Storytelling in the Early Bereavement Period to Reduce Emotional Distress Among Surrogates Involved in a Decision to Limit Life Support in the ICU: A Pilot Feasibility Trial. Crit Care Med. 2017 Jan;45(1):35-46.
Kynoch K, Chang A, Coyer F, McArdle A. The effectiveness of interventions to meet family needs of critically ill patients in an adult intensive care unit: a systematic review update. JBI Database System Rev Implement Rep. 2016 Mar;14(3):181-234.
Wintermann GB, Weidner K, Strauß B, Rosendahl J, Petrowski K. Predictors of posttraumatic stress and quality of life in family members of chronically critically ill patients after intensive care. Ann Intensive Care. 2016 Dec;6(1):69.
Rydingsward JE, Horkan CM, Mogensen KM, Quraishi SA, Amrein K, Christopher KB. Functional Status in ICU Survivors and Out of Hospital Outcomes: A Cohort Study. Crit Care Med. 2016 May;44(5):869-79.
Choi J, Donahoe MP, Hoffman LA. Psychological and Physical Health in Family Caregivers of Intensive Care Unit Survivors: Current Knowledge and Future Research Strategies. J Korean Acad Nurs. 2016 Apr;46(2):159-67
de Azevedo JRA, Montenegro WS, Rodrigues DP, de C. Souza SC, Araujo VFS, de Paula MP, et al. Long-term cognitive outcomes among unselected ventilated and non-ventilated ICU patients. Journal of Intensive Care 2017;5(1):18.
Hashem MD, Nallagangula A, Nalamalapu S, Nunna K, Nausran U, Robinson KA, Dinglas VD, Needham DM, Eakin MN. Patient outcomes after critical illness: a systematic review of qualitative studies following hospital discharge. Crit Care. 2016 Oct 26;20(1):345.
Hopkins RO, Wade D, Jackson JC. What's new in cognitive function in ICU survivors. Intensive Care Med. 2017 Feb;43(2):223-225.
Gawlytta R, Niemeyer H, Böttche M, Scherag A, Knaevelsrud C, Rosendahl J. Internet -based cognitive-behavioural writing therapy for reducing post-traumatic stress after intensive care for sepsis in patients and their spouses (REPAIR): study protocol for a randomised-controlled trial. BMJ Open. 2017 Feb 22;7(2):e014363.
Aitken LM, Rattray J, Hull AM. The creation of patient diaries as a therapeutic intervention - for whom? Nurs Crit Care. 2017 Mar;22(2):67-69
Warlan H, Howland L. Posttraumatic stress syndrome associated with stays in the intensive care unit: importance of nurses' involvement. Crit Care Nurse. 2015 Jun;35(3):44-52
Davidson JE, Stutzer K. The Ethics of Post-Intensive Care Syndrome. AACN Adv Crit Care. 2016 Apr-Jun;27(2):236-40
Francis L, Vorwaller MA, Aboumatar H, Frosch DL, Halamka J, Rozenblum R, Rubin E, Lee BS, Sugarman J, Turner K, Brown SM; Privacy, Access, and Engagement Task Force of the Libretto Consortium of the Gordon and Betty Moore Foundation.. A Clinician's Guide to Privacy and Communication in the ICU. Crit Care Med. 2017 Mar;45(3):480-485
Haines KJ, Kelly P, Fitzgerald P, Skinner EH, Iwashyna TJ. The Untapped Potential of Patient and Family Engagement in the Organization of Critical Care. Crit Care Med. 2017 Feb 23.
Wyskiel RM, Weeks K, Marsteller JA. Inviting Families to Participate in Care: A Family Involvement Menu. The Joint Commission Journal on Quality and Patient Safety 41(1): 43-46.
Gerritsen RT, Hartog CS, Curtis JR. New developments in the provision of family-centered care in the intensive care unit. Intensive Care Med. 2017 Apr;43(4):550-553.
de Azevedo JR, Montenegro WS, Rodrigues DP, de C Souza SC, Araujo VF, de Paula MP, Prazeres PH, da Luz Leitão A, Mendonça AV. Long-term cognitive outcomes among unselected ventilated and non-ventilated ICU patients. J Intensive Care. 2017 Feb 17;5:18
Chung CR, Yoo HJ, Park J, Ryu S. Cognitive Impairment and Psychological Distress at Discharge from Intensive Care Unit. Psychiatry Investig. 2017 May;14(3):376-379.
Rawal G, Yadav S, Kumar R. Post-intensive care syndrome: An overview. J Transl Intern Med 2017; 5: 90-92.
Kjer CKW, Estrup S, Poulsen LM, Mathiesen O. Follow-up after intensive care treatment: a questionnaire survey of intensive care aftercare in Denmark. Acta Anaesthesiol Scand. 2017 Jul 7. doi: 10.1111/aas.12938
Jónasdóttir RJ, Jónsdóttir H, Gudmundsdottir B, Sigurdsson GH. Psychological recovery after intensive care: Outcomes of a long-term quasi-experimental study of structured nurse-led follow-up. Intensive Crit Care Nurs. 2017 Jul 21. pii: S0964-3397(17)30080-0
Puntillo KA, Max A, Chaize M, Chanques G, Azoulay E. Patient Recollection of ICU Procedural Pain and Post ICU Burden: The Memory Study. Crit Care Med. 2016 Nov;44(11):1988-1995.
Goldfarb MJ, Bibas L, Bartlett V, Jones H, Khan N. Outcomes of Patient- and Family-Centered Care Interventions in the ICU: A Systematic Review and Meta-Analysis. Crit Care Med. 2017 Oct;45(10):1751-1761
Ceri E Battle, Karen James, Tom Bromfield, Paul Temblett. Predictors of post-traumatic stress disorder following critical illness: A mixed methods study. Journal of the Intensive Care Society 2017, doi 10.1177/1751143717713853
Dziadzko V, Dziadzko MA, Johnson MM, Gajic O, Karnatovskaia LV. Acute psychological trauma in the critically ill: Patient and family perspectives. Gen Hosp Psychiatry. 2017 Jul;47:68-74
Hosey MM, Jaskulski JJ, Mantheiy EC, Kudchadkar SR, Wegener ST, Needham DM. Animal-assisted activity in the intensive care unit. ICU Management & Practice 2017 (17) 3: 193-195
Milton A, Brück E, Schandl A, Bottai M, Sackey P. Early psychological screening of intensive care unit survivors: a prospective cohort study. Crit Care. 2017 Nov 9;21(1):273.
Lewis CL, Taylor JZ. Impact of prior ICU experience on ICU patient family members' psychological distress: A descriptive study. Intensive Crit Care Nurs. 2017 Dec;43:129
Bäckman CG, Ahlberg M, Jones C, Frisman GH. Group meetings after critical illness-Giving and receiving strength. Intensive Crit Care Nurs. 2018 Mar 28.
Bohart S, Egerod I, Bestle MH, Overgaard D, Christensen DF, Jensen JF. Recovery programme for ICU survivors has no effect on relatives' quality of life: Secondary analysis of the RAPIT-study. Intensive Crit Care Nurs. 2018 Mar 29
Davidson JE, Strathdee SA. The future of family-centred care in intensive care. Intensive Crit Care Nurs. 2018 Mar 29
Haraldsson L, Christensson L, Conlon L, Henricson M. The experiences of ICU patients during follow-up sessions--a qualitative study. Intensive Crit Care Nurs. 2015 Aug;31(4):223-31
Khandelwal N, Hough CL, Downey L, Engelberg RA, Carson SS, White DB, Kahn JM, Jones DM, Key MD, Reagan W, Porter LS, Curtis JR, Cox CE. Prevalence, Risk Factors, and Outcomes of Financial Stress in Survivors of Critical Illness. Crit Care Med. 2018 Mar 2
Manning JC, Pinto NP, Rennick JE, Colville G, Curley MAQ. Conceptualizing Post Intensive Care Syndrome in Children-The PICS-p Framework. Pediatr Crit Care Med. 2018 Apr;19(4):298-300
Alfheim HB, Hofsø K, Småstuen MC, Tøien K, Rosseland LA, Rustøen T. Post-traumatic stress symptoms in family caregivers of intensive care unit patients: A longitudinal study. Intensive Crit Care Nurs. 2018 Jun 21
Berntzen H, Bjørk IT, Wøien H. "Pain relieved, but still struggling"-Critically ill patients experiences of pain and other discomforts during analgosedation. J Clin Nurs. 2018 Jan;27(1-2):e223-e234
Marra A, Pandharipande PP, Girard TD, Patel MB, Hughes CG, Jackson JC, Thompson JL, Chandrasekhar R, Ely EW, Brummel NE. Cooccurrence of Post-Intensive Care Syndrome Problems Among 406 Survivors of Critical Illness. Crit Care Med. 2018 May 21
Roberts MB, Glaspey LJ, Mazzarelli A, Jones CW, Kilgannon HJ, Trzeciak S, Roberts BW. Early Interventions for the Prevention of Posttraumatic Stress Symptoms in Survivors of Critical Illness: A Qualitative Systematic Review. Crit Care Med. 2018 Aug;46(8):1328-1333
Instenes I, Gjengedal E, Eide LSP, Kuiper KKJ, Ranhoff AH, Norekvål TM; CARDELIR Investigators. "Eight Days of Nightmares … " - Octogenarian Patients' Experiences of Postoperative Delirium after Transcatheter or Surgical Aortic Valve Replacement. Heart Lung Circ. 2018 Feb;27(2):260-266
Kleinpell R, Heyland DK, Lipman J, Sprung CL, Levy M, Mer M, Koh Y, Davidson J, Taha A, Curtis JR; Council of the World Federation of Societies of Intensive and Critical Care Medicine. Patient and family engagement in the ICU: Report from the task force of the World Federation of Societies of Intensive and Critical Care Medicine. J Crit Care. 2018 Dec;48:251-256.
Minton C, Batten L, Huntington A. A multicase study of prolonged critical illness in the intensive care unit: Families' experiences. Intensive Crit Care Nurs. 2019 Feb;50:21-27
Skene C, Gerrish K, Price F, Pilling E, Bayliss P, Gillespie S. Developing family-centred care in a neonatal intensive care unit: An action research study. Intensive Crit Care Nurs. 2019 Feb;50:54-62
Train S, Kydonaki K, Rattray J, Stephen J, Weir CJ, Walsh TS. Frightening and Traumatic Memories Early after Intensive Care Discharge. Am J Respir Crit Care Med. 2019 Jan 1;199(1):120-123.
Wilson ME, Beesley S, Grow A, Rubin E, Hopkins RO, Hajizadeh N, Brown SM. Humanizing the intensive care unit. Crit Care. 2019 Jan 28;23(1):32.
Deffner T, Schönle J, Neyer FJ, Schulze J. (German) Assessment of mental symptoms in intensive care unit patients : Suggestion for a German version of the Intensive Care Psychological Assessment Tool. Med Klin Intensivmed Notfmed. 2019 Feb 5
Nguyen YL. Dealing with internet-based information obtained by families of critically ill patients. Intensive Care Med. 2019 May 9
Prescott HC, Iwashyna TJ, Blackwood B, Calandra T, Chlan LL, Choong K, Connolly B, Dark P, Ferrucci L, Finfer S, Girard TD, Hodgson C, Hopkins RO, Hough CL, Jackson JC, Machado FR, Marshall JC, Misak C, Needham DM, Panigrahi P, Reinhart K, Yende S, Zafonte R, Rowan KM, Angus DC; International Sepsis Forum. Understanding and Enhancing Sepsis Survivorship: Priorities for Research and Practice. Am J Respir Crit Care Med. 2019 Jun 4
Righy C, Rosa RG, da Silva RTA, Kochhann R, Migliavaca CB, Robinson CC, Teche SP, Teixeira C, Bozza FA, Falavigna M. Prevalence of post-traumatic stress disorder symptoms in adult critical care survivors: a systematic review and meta-analysis. Crit Care. 2019 Jun 11;23(1):213
Jakab M, Day AZ, Kraguljac A, Brown M, Mehta S. Family Presence in the Adult ICU During Bedside Procedures. J Intensive Care Med. 2019 Jul;34(7):587-593
King J, O'Neill B, Ramsay P, Linden MA, Darweish Medniuk A, Outtrim J, Blackwood B. Identifying patients' support needs following critical illness: a scoping review of the qualitative literature. Crit Care. 2019 May 24;23(1):187
Lee HW, Park Y, Jang EJ, Lee YJ. Intensive care unit length of stay is reduced by protocolized family support intervention: a systematic review and meta-analysis. Intensive Care Med. 2019 Jul 3
Major ME, van Nes F, Ramaekers S, Engelbert RHH, van der Schaaf M. Survivors of Critical Illness and Their Relatives: A Qualitative Study on Hospital Discharge Experience. Ann Am Thorac Soc. 2019 Aug 8
Riegel M, Randall S, Buckley T. Memory making in end-of-life care in the adult intensive care unit: A scoping review of the research literature. Aust Crit Care. 2019 Sep;32(5):442-447
Bein T, Bienvenu OJ, Hopkins RO. Focus on long-term cognitive, psychological and physical impairments after critical illness. Intensive Care Med. 2019 Oct;45(10):1466-1468
Clark ME, Cummings BM, Kuhlthau K, Frassica N, Noviski N. Impact of Pediatric Intensive Care Unit Admission on Family Financial Status and Productivity: A Pilot Study. J Intensive Care Med. 2017 Jan 1
Ferrando P, Gould DW, Walmsley E, Richards-Belle A, Canter R, Saunders S, Harrison DA, Harvey S, Heyland DK, Hinton L, McColl E, Richardson A, Richardson M, Wright SE, Rowan KM. Family satisfaction with critical care in the UK: a multicentre cohort study. BMJ Open. 2019 Aug 20;9(8):e028956
Geense WW, van den Boogaard M, van der Hoeven JG, Vermeulen H, Hannink G, Zegers M. Nonpharmacologic Interventions to Prevent or Mitigate Adverse Long-Term Outcomes Among ICU Survivors: A Systematic Review and Meta-Analysis. Crit Care Med. 2019 Nov;47(11):1607-1618
Bloom SL, Stollings JL, Kirkpatrick O, Wang L, Byrne DW, Sevin CM, Semler MW. Randomized Clinical Trial of an ICU Recovery Pilot Program for Survivors of Critical Illness. Crit Care Med. 2019 Oct;47(10):1337-1345
Haines KJ, McPeake J, Hibbert E, et al. Enablers and Barriers to Implementing ICU Follow-Up Clinics and Peer Support Groups Following Critical Illness: The Thrive Collaboratives. Crit Care Med. 2019 Sep;47(9):1194-1200
Jeong YJ, Kang J. Development and validation of a questionnaire to measure post-intensive care syndrome. Intensive Crit Care Nurs. 2019 Sep 12:102756
Hosey MM, Leoutsakos JS, Li X, Dinglas VD, Bienvenu OJ, Parker AM, Hopkins RO, Needham DM, Neufeld KJ. Screening for posttraumatic stress disorder in ARDS survivors: validation of the Impact of Event Scale-6 (IES-6). Crit Care. 2019 Aug 7;23(1):276
Fridh I, Åkerman E. Family-centred end-of-life care and bereavement services in Swedish intensive care units: A cross-sectional study. Nurs Crit Care. 2019 Oct 24
Birk JL, Sumner JA, Haerizadeh M, Heyman-Kantor R, Falzon L, Gonzalez C, Gershengoren L, Shapiro P, Edmondson D, Kronish IM. Early interventions to prevent posttraumatic stress disorder symptoms in survivors of life-threatening medical events: A systematic review. J Anxiety Disord. 2019 May;64:24-39
Kamdar BB, Suri R, Suchyta MR, Digrande KF, Sherwood KD, Colantuoni E, Dinglas VD, Needham DM, Hopkins RO. Return to work after critical illness: a systematic review and meta-analysis. Thorax. 2020 Jan;75(1):17-27 https://www.ncbi.nlm.nih.gov/pubmed/31704795
Lee M, Kang J, Jeong YJ. Risk factors for post-intensive care syndrome: A systematic review and meta-analysis. Aust Crit Care. 2019 Dec 12
Van Aerde N, Meersseman P, Debaveye Y, Wilmer A, Gunst J, Casaer MP, Bruyninckx F, Wouters PJ, Gosselink R, Van den Berghe G, Hermans G. Five-year impact of ICU-acquired neuromuscular complications: a prospective, observational study. Intensive Care Med. 2020 Jan 22
Shankar-Hari M, Saha R, Wilson J, Prescott HC, Harrison D, Rowan K, Rubenfeld GD, Adhikari NKJ. Rate and risk factors for rehospitalisation in sepsis survivors: systematic review and meta-analysis. Intensive Care Med. 2020 Jan 23
Amass TH, Villa G, OMahony S, Badger JM, McFadden R, Walsh T, Caine T, McGuirl D, Palmisciano A, Yeow ME, De Gaudio R, Curtis JR, Levy MM. Family Care Rituals in the ICU to Reduce Symptoms of Post-Traumatic Stress Disorder in Family Members-A Multicenter, Multinational, Before-and-After Intervention Trial. Crit Care Med. 2020 Feb;48(2):176-184
Ashdown, L. C., & Maniate, J. M. (2020). Determining Patient Readiness to Share Their Healthcare Stories: A Tool for Prospective Patient Storytellers to Determine Their Readiness to Discuss Their Healthcare Experiences. Journal of Patient Experience. https://doi.org/10.1177/2374373520948439
Rapa E, Dalton L, Stein A. Talking to children about illness and death of a loved one during the COVID-19 pandemic. Lancet Child Adolesc Health. 2020 Aug;4(8):560-562
Martin K. (2018) Memory Diaries after Delirium. Link
Janssens U. PatientInnenwahrnehmung von Intensivtagebüchern. (German) IntensivNews 1 (2022) 22-24
Richards, D. Case report of a former patient: link
After Care
Jones C, Skirrow P, Griffins RD et al. Post-traumatic stress disorder-related symptoms in relatives of patients following intensive care. Intensive Care Medicine 2004; 30:456-60
Griffith RD, Jones C (2007): Seven lessons from 20 years of follow-up on intensive care unit survivors. Curr Opin Care 13: 508-513
Jones C, Griffiths RD. (2007): Patient and caregiver counselling after the intensive care unit: what are the needs and how should they be met? Curr Opin Crit Care. Oct;13(5):503-7
Jones C, Backman C, Capuzzo M, Flaatten H, Rylander C, Griffiths RD. Precipitants of post-traumatic stress disorder following intensive care: a hypothesis generating study of diversity in care. Intens Care Med 2007;33(6):978-985
Rattray JE; Hull AM (2008): Emotional outcome after intensive care: literature review.; Journal of Advanced Nursing, Oct; 64 (1): 2-13
Davidson JE, Jones C & Bienvenue OJ. Family response to critical illness: Postintensive care syndrome–family. Crit Care Med 2012 Vol. 40, No. 2, 618-24
Desai, Law & Needham. Long-term complications of critical care. Crit Care Med 2011 (39) 2: 371-379
Needham et al. Improving long-term outcomes after discharge from intensive care unit: Report from a stakeholders’ conference. Crit Care Med 2012 Vol. 40, No. 2. 502-509
Hough CL, Herridge MS. Long-term outcome after acute lung injury. Curr Opin Crit Care. 2012
Jones C. What’s new on the post-ICU burden for patients and relatives? Intensive Care Med (2013) 39:1832–1835.
Parker A, Sricharoenchai T, Needham DM. Early Rehabilitation in the Intensive Care Unit: Preventing Physical and Mental Health Impairments. Curr Phys Med Rehabil Rep. 2013 Dec;1(4):307-314.
Jones C. Recovery post ICU. Intensive Crit Care Nurs. 2014 Oct;30(5):239-45.
Karnatovskaia LV, Johnson MM, Benzo RP, Gajic O. The spectrum of psychocognitive morbidity in the critically ill: a review of the literature and call for improvement. J Crit Care. 2015 Feb;30(1):130-7.
Davies H, McKenzie N, Williams TA, Leslie GD, McConigley R, Dobb GJ, Aoun SM. Challenges during long-term follow-up of ICU patients with and without chronic disease. Aust Crit Care. 2015 May 1.
Pattison N, O'Gara G, Rattray J. After critical care: Patient support after critical care. A mixed method longitudinal study using email interviews and questionnaires. Intensive Crit Care Nurs. 2015 Mar 3.
Petrinec AB, Mazanec PM, Burant CJ, Hoffer A, Daly BJ. Coping Strategies and Posttraumatic Stress Symptoms in Post-ICU Family Decision Makers. Crit Care Med. 2015 Jun;43(6):1205-12.
Quasim, T., Brown, J., Kinsella, J. (2015). Employment, social dependency and return to work after intensive care. Journal of the Intensive Care Society 16 (1) 31-36.
Ahlberg M, Bäckman C, Jones C, Walther S, Hollman Frisman G. (2015). Moving on in life after intensive care - partners' experience of group communication. Nurs Crit Care. May 29.
Jensen JF, Thomsen T, Overgaard D, Bestle MH, Christensen D, Egerod I. Impact of follow-up consultations for ICU survivors on post-ICU syndrome: a systematic review and meta-analysis. Intensive Care Med. 2015 May;41(5):763-75.
Aitken LM, Castillo MI, Ullman A, Engström Å, Cunningham K, Rattray J. What is the relationship between elements of ICU treatment and memories after discharge in adult ICU survivors? Aust Crit Care. 2016 Feb;29(1):5-14.
Mikkelsen ME, Jackson JC, Hopkins RO, Thompson C, Andrews A, Netzer G, Bates DM, Bunnell AE, Christie LM, Greenberg SB, Lamas DJ, Sevin CM, Weinhouse G, Iwashyna TJ. Peer Support as a Novel Strategy to Mitigate Post-Intensive Care Syndrome. AACN Adv Crit Care. 2016 Apr-Jun;27(2):221-9
Lasiter S, Oles SK, Mundell J, London S, Khan B. Critical Care Follow-up Clinics: A Scoping Review of Interventions and Outcomes. Clin Nurse Spec. 2016 Jul-Aug;30(4):227-237.
Sevin CM, Bloom SL, Jackson JC, Wang L, Wesley Ely E, Stollings JL. Comprehensive care of ICU survivors: Development and implementation of an ICU recovery center. J Crit Care. 2018 Aug;46:141-148
Beadman M, Carraretto M. Key elements of an evidence-based clinical psychology service within adult critical care. Journal of the Intensive Care Society Sept. 2021 https://doi.org/10.1177/17511437211047178
Brauchle M, Nydahl P, Pregartner G, Hoffmann M, Jeitziner MM, Practice of Family-centred Care in Intensive Care Units before the COVID-19-Pandemic: a cross-sectional analysis in German-speaking countries, Intensive & Critical Care Nursing (2021), doi: https://doi.org/10.1016/j.iccn. 2021.103139
Niven DJ, Olafson K, Parhar KKS, Patten SB, Rewa OG, Rochwerg B, Sept B, Soo A, Spence K, Spence S, Straus S, West A, Parsons Leigh J, Fiest KM. Restricted visitation policies in acute care settings during the COVID-19 pandemic: a scoping review. Crit Care. 2021 Sep 25;25(1):347
Deffner T, Hierundar A, Knochel K, Münch U, Neitzke G, Nydahl P, Rogge A (2021) Positionspapier zur Regelung von Angehörigenbesuchen in Krankenhäusern während Pandemien https://bit.ly/3mamvm2
Turner-Stokes L, Corner EJ, Siegert RJ, et al. The post-ICU presentation screen (PICUPS) and rehabilitation prescription (RP) for intensive care survivors part I: Development and preliminary clinimetric evaluation. Journal of the Intensive Care Society. February 2021. doi:10.1177/1751143720988715
Puthucheary Z, Brown C, Corner E, et al. The Post-ICU presentation screen (PICUPS) and rehabilitation prescription (RP) for intensive care survivors part II: Clinical engagement and future directions for the national Post-Intensive care Rehabilitation Collaborative. Journal of the Intensive Care Society. February 2021. doi:10.1177/1751143720988708
Books
Ridley S (ed). The psychological challenges of intensive care. Wiley-Blackwell, 2005
Griffiths RD, Jones C (eds). Intensive Care Aftercare. Oxford: Butterworth-Heinemann 2002.
Willis CB (2013). Lasting words. Brattleboro, Vermont: Green Writers Press
Bienvenu OJ, Jones C and Hopkins RO. Psychological and cognitive impact of critical illness. Oxford University press: Oxford, New York 2017.
Preiser JC, Herridge M, Azoulay E (2020). Post-Intensive Care Syndrome. Springer: Berlin. https://link.springer.com/book/10.1007/978-3-030-24250-3
Haynes K, McPeake J, Sevin CM (ed) (2021) Improving Critical Care Survivorship. https://www.springer.com/gp/book/9783030686796
