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Literature

• Bergbom I, Svensson C, Berggren E, Kamsula M. (1999): Patients' and relatives' opinions and feelings about diaries kept by nurses in an intensive care unit: pilot study. Intensive Crit Care Nurs. Aug;15(4):185-91.
• Rier, D. (2000): The missing voice of the critically ill: a medical sociologist's first-person account. Sociology of Health & Illness, Volume 22, Number 1, January, pp. 68-93(26)
• Bäckman CG, Walther SM. (2001): Use of a personal diary written on the ICU during critical illness. Intensive Care Med. Feb;27(2):426-9.
• Åkerman, E. (2002): Patient diary and follow up after intensivecare. www.nofi.info/forskning/ Patient/patdagbok/akermaneva_eng.htm, last contact on 2.5.08
• Jones C, Capuzzo M, Flaatten H, et al. (2006): ICU diaries may reduce symptoms of posttraumatic stress disorder. Intensive Care Med 32 (Suppl 1): S144.
• Egerod I, Schwartz-Nielsen KH, Hansen GM, Laerkner E. (2007): The extent and application of patient diaries in Danish ICUs in 2006. Nurs Crit Care. May-Jun;12(3):159-67.

• Roulin MJ, Hurst S, Spirig R. (2007): Diaries written for ICU patients. Qual Health Res. Sep;17(7):893-901.
• Storli SL, Lindseth A, Asplund K. (2007): “Being somewhere else” – delusion or relevant experience? A phenomenological investigation into the meaning of lived experience from being in intensive care. International Journal of qualitative studies on health and well being, 2(3), 144-159
• Storli SL, Lindseth A, Asplund K. (2008):  A journey in quest of meaning: a hermeneutic-phenomenological study on living with memories from intensive care. Nurs Crit Care. Mar-Apr;13(2):86-96
• Robson, W. (2008): An evaluation of patient diaries in intensive care. World of critical care nursing (6) 2: 34-37
• Hayes A, Kelly A (2008). patient diaries: can they off psychological help to cancer patients? Cancer Nursing practice 7(6): 25-28.
• Kloos JA, Daly BJ. (2008). Effect of a Family-Maintained Progress Journal on anxiety of families of critically ill patients. Crit Care Nurs Q. 31(2):96-107
• Knowles RE, Tarrier N. (2009). Evaluation of the effect of prospective patient diaries on emotional well-being in intensive care unit survivors: a randomized controlled trial. Crit Care Med. Jan;37(1):184-91
• Engström A, Grip K, Hamrén M. (2009): Experiences of intensive care unit diaries: 'touching a tender wound'. Nurs Crit Care 14(2): 61-7
• Storli SL, Lind R. (2009): The meaning of follow-up in intensive care: patients' perspective. Scand J Caring Sci. Mar;23(1):45-56
• Egerod I, Christensen D (2009): Analysis of patient diaries in Danish ICUs: a narrative approach. Intensive Crit Care Nurs. 2009 Oct;25(5):268-77
• Greco MM, Florio SD, Romani M, Romigi G Portis L. (2009). L’utilizzo dei “Diari del paziente” in Terapia Intensiva. Scenario 26 (4): 22-27.
• Åkerman E, Anetth Granberg-Axéll A, Anders Ersson A, Bengt Fridlund B, Bergbom I (2010): Use and practice of patient diaries in Swedish intensive care units: a national survey. Nursing in Critical Care 15 (1): 26 – 33
• Nydahl P, Knück D, Egerod I (2010): The extend and application of patient diaries in German Intensive Care Units. Connect – The World of Critical Care Nursing 7 (2): 122-126
• Bäckman CG, Orwelius L, Sjöberg F, Fredrikson M, Walther SM. (2010): Long-term effect of the ICU-diary concept on quality of life after critical illness. Acta Anaesthesiol Scand. 54(6):736-43
• Gjengedal E, Storli SL, Norlemann Holme A, Eskerud RS (2010): An act of caring – patient diaries in Norwegian intensive care units. Nursing in Critical Care 15 (4):176 – 184
• Egerod I, Bagger C (2010):  Patients' experiences of intensive care diaries-A focus group study. Intensive Crit Care Nurs. Oct;26(5):278-87
• Egerod I, Christensen D. (2010) A Comparative Study of ICU Patient Diaries vs. Hospital Charts. Qualitative Health Research 22(10) 1446–1456.
• Knück D, Nydahl P (2010): Einführung des Intensivtagebuches: Erste Erfahrungen sind positiv (German). Pflegen Intensiv 3 (10): 36-40.
• Egerod I, Storli SL, Åkerman E. (2011). Intensive care patient diaries in Scandinavia: a comparative study of emergence and evolution. Nurs Inq. Sep;18(3):235-46
• Nydahl P, Knück D, Bischoff K, Fritzsch A (2011). Evaluationsstudie Das Tagebuch war eine große Hilfe für mich (German). Pflegen Intensiv 1: 29-34
• Egerod I, Christensen D, Schwartz-Nielsen KH, Ågård AS. (2011). Constructing the illness narrative: A grounded theory exploring patients’ and relatives’ use of intensive care diaries. Crit Care Med Vol. 39(9), 1922-8.
• Jones C, Bäckman C, Capuzzo M, Egerod I, Flaatten H, Granja C, Rylander C, Griffiths RD; RACHEL group (2010). Intensive care diaries reduce new onset post traumatic stress disorder following critical illness: a randomised, controlled trial. Crit Care 14(5):R168. Epub 2010 Sep 15.
• Garrouste-Orgeas M, Coquet I, Perier A, Timsit JF, Pochard F, Lancrin F, Philippart F, Vesin A, Bruel C, Blel Y, Angeli S, Cousin N, Carlet J, Misset B. Impact of an intensive care unit diary on psychological distress in patients and relatives Crit Care Med. 2012 Jul;40(7):2033-40.
• Jones, C, Bäckman C, Griffith C. (2012). Intensive Care diaries reduce PTSD-related symptoms in relatives following critical illness. Am J Crit Care 21 (3): 172-6.
• Greco MM, Portis L, Galizio M (2012). Attitudini e percezioni del personale sanitario nell’utilizzo dei Diari di Terapia Intensiva. Scenario 29 (2): 12-18.
• Akerman E, Ersson A, Fridlund B, Samuelson K. Preferred content and usefulness of a photodiary as described by ICU-patients-A mixed method analysis. Aust Crit Care. 2013 Feb;26(1):29-35.
• Perier A, Revah-Levy A, Bruel C, Cousin N, Angeli S, Brochon S, Philippart F, Max A, Gregoire C, Misset B, Garrouste-Orgeas M (2013). Phenomenological analysis of healthcare worker perceptions of intensive care unit diaries. Crit Care. 2013 Jan 21;17(1):R13
• Egerod I, Risom SS, Thomsen T, Storli SL, Eskerud RS, Holme AN, Samuelson KA. ICU-recovery in Scandinavia: A comparative study of intensive care follow-up in Denmark, Norway and Sweden. Intensive Crit Care Nurs. 2013. In press.
• Ewens B, Chapman R, Tulloch A, Hendricks JM. ICU survivors' utilisation of diaries post discharge: A qualitative descriptive study. Aust Crit Care. 2014 Feb;27(1):28-35.
• Nydahl P, Bäckman CG, Bereuther J, Thelen M (2014). How much time do nurses need to write an ICU diary? Nursing in Critical Care, 19(5):222-7.19(5):222-7.
• Aitken LM, Rattray J, Hull A, Kenardy JA, Le Brocque R, Ullman AJ. The use of diaries in psychological recovery from intensive care. Crit Care. 2013 Dec 18;17(6):253
• Di Gangi S, Naretto G, Cravero N, Livigni S.A narrative-based study on communication by family members in intensive care unit. J Crit Care. 2013 Aug;28(4):483-9.
• Garrouste-Orgeas M, Périer A, Mouricou P, Grégoire C, Bruel C, Brochon S, Philippart F, Max A, Misset B. Writing in and reading ICU diaries: qualitative study of families' experience in the ICU. PLoS One. 2014 Oct 16;9(10):e110146.
• Nair R, Mitchell M, Keogh S. The extent and application of patient diaries in Australian intensive care units: A national survey. Australian Critical Care. in press
• Nydahl P, Knueck D, Egerod I (2015). Extent and application of ICU diaries in Germany in 2014. Nursing in Critical Care. 20(3):155-62.
• Groß, C. (2014). Diaries on intensive care units. The view of the nurses (German: Patiententagebücher auf Intensivstation. Eine Betrachtung aus Sicht der Pflegenden. In: Schiff, A. (Hg.) Familien in kritischen Situationen der klinischen Pflege. Opladen: Barbara Budrich. 165-186.)
• Ullman AJ, Aitken LM, Rattray J, Kenardy J, Le Brocque R, MacGillivray S, Hull AM. Diaries for recovery from critical illness. Cochrane Database Syst Rev. 2014 Dec 9;12:CD010468
• Johansson M, Hanson E, Runeson I, Wåhlin I. Family members' experiences of keeping a diary during a sick relative's stay in the intensive care unit: A hermeneutic interview study. Intensive Crit Care Nurs. 2015 Mar 5.
• Engström Å, Rogmalm K, Marklund L, Wälivaara BM. Follow-up visit in an ICU: receiving a sense of coherence. Nurs Crit Care. 2015 Feb 18. doi: 10.1111/nicc.12168.
• Christensen M, Probst B. Barbara's story: a thematic analysis of a relative's reflection of being in the intensive care unit. Nurs Crit Care. 2015 Mar;20(2):63-70.
• Ewens BA, Hendricks JM, Sundin D. The use, prevalence and potential benefits of a diary as a therapeutic intervention/tool to aid recovery following critical illness in intensive care: a literature review. J Clin Nurs. 2015 May;24(9-10):1406-25.
• Lichtenberger, D. (2015). Erfolgreich konzipieren und implementieren (German: succesful designing and implementation). Intensiv 23 (3): 140-143.
• Ullman AJ, Aitken LM, Rattray J, Kenardy J, Le Brocque R, MacGillivray S, Hull AM. (2015) Intensive care diaries to promote recovery for patients and families after critical illness: A Cochrane Systematic Review. Int J Nurs Stud., in press
• Heindl P, Bachlechner A (2015). Coping mit dem Intensivtagebuch (German: Coping by an ICU diary). QuPuG 1(2): 92-100.
• Glimelius Petersson C, Ringdal M, Apelqvist G, Bergbom I. Diaries and memories following an ICU stay: a 2-month follow-up study. Nurs Crit Care. 2015 May 25. doi: 10.1111/nicc.12162.
• Nielsen AH, Angel S. How diaries written for critically ill influence the relatives: a systematic review of the literature. Nursing in Critical Care 2015, doi: 10.1111/nicc.12158
• Nielsen AH, Angel S. Relatives perception of writing diaries for critically ill. A phenomenological hermeneutical study. Nursing in Critical Care 2015, doi: 10.1111/nicc.12147
• Fukuda T, Inoue T, Kinoshita Y, Yukawa T. Effectiveness of ICU Diaries: Improving “Distorted Memories” Encountered during ICU Admission. Open Journal of Nursing 2015, 5, 313-324.
• Stayt LC, Seers K, Tutton L. Making sense of it: intensive care patients' phenomenological accounts of story construction. Nurs Crit Care. 2015 Nov 9. doi: 10.1111/nicc.12224.
• Nielsen AH, Angel S. (2016). How diaries written for critically ill influence the relatives: a systematic review of the literature. Nursing in Critical Care.
• Beg M, Scruth E, Liu V. Developing a framework for implementing intensive care unit diaries: a focused review of the literature. Aust Crit Care. 2016 Nov;29(4):224-234.
• Locke M, Eccleston S, Ryan CN, Byrnes TJ, Mount C, McCarthy MS. Developing a Diary Program to Minimize Patient and Family Post-Intensive Care Syndrome. AACN Adv Crit Care. 2016 Apr-Jun;27(2):212-20.
• O'Gara G, Pattison N. A qualitative exploration into the long-term perspectives of patients receiving critical care diaries across the United Kingdom. Intensive Crit Care Nurs. 2016 Jun 7
• Hester M, Ingalls NK, Hatzfeld JJ. Perceptions of ICU Diary Utility and Feasibility in a Combat ICU. Mil Med. 2016 Aug;181(8):895-9.
• Nielsen AH, Angel S. Consolation or confrontation when interacting through an ICU diary - A phenomenological-hermeneutical study. Intensive Crit Care Nurs. 2016 Aug 10
• Heindl P, Bachlechner A, Nydahl P, Egerod I. Extent and application of patient diaries in Austria: process of continuing adaptation. Nurs Crit Care. 2016 Sep 21.
• Blair KTA, BA, Eccleston SD, Binder HM, McCarthy MS. Improving the Patient Experience by Implementing an ICU Diary for Those at Risk of Post-intensive Care Syndrome. Journal of Patient Experience. Journal of Patient Experience 2017, Feb. doi 10.1177/2374373517692927
• Teece A, Baker J. Thematic Analysis: How do patient diaries affect survivors' psychological recovery? Intensive Crit Care Nurs. 2017 Mar 28. pii: S0964-3397(16)30135-5.
• Ednell AK, Siljegren S, Engström Å. The ICU patient diary-A nursing intervention that is complicated in its simplicity: A qualitative study. Intensive Crit Care Nurs. 2017 Feb 20
• Aitken LM, Rattray J, Kenardy J, Hull AM, Ullman AJ, Le Brocque R, Mitchell M, Davis C, Castillo MI, Macfarlane B. Perspectives of patients and family members regarding psychological support using intensive care diaries: An exploratory mixed methods study. J Crit Care. 2017 Apr;38:263-268
• Johansson M, Wåhlin I, Magnusson L, Runeson I, Hanson E. Family members' experiences with intensive care unit diaries when the patient does not survive. Scand J Caring Sci. 2017 May 19. doi: 10.1111/scs.12454
• Scruth EA, Oveisi N, Liu V. Innovation and Technology: Electronic Intensive Care Unit Diaries. AACN Adv Crit Care. 2017 Summer;28(2):191-199.
• Huynh TG, Covalesky M, Sinclair S, Gunter H, Norton T, Chen A, Yi C. Measuring Outcomes of an Intensive Care Unit Family Diary Program. AACN Adv Crit Care. 2017 Summer;28(2):179-190
• Laxton, L. (2017). Implementing the ICU diary in the medical intensive care unit. SIS Quarterly Practice Connections, 2(2), 19–20.
• Egerod I, Andersson AE, Fagerdahl AM, Knudsen VE. Images of suffering depicted in diaries of family caregivers in the acute stage of necrotising soft tissue infection: A content analysis. Intensive Crit Care Nurs. 2017 Aug;41:57-62.
• Mikkelsen G. The meaning of personal diaries to children and families in the paediatric intensive care unit: A qualitative study. Intensive Crit Care Nurs. 2017 Nov 25
• Garrouste-Orgeas M, Flahault C, Fasse L, Ruckly S, Amdjar-Badidi N, Argaud L, Badie J, Bazire A, Bige N, Boulet E, Bouadma L, Bretonnière C, Floccard B, Gaffinel A, de Forceville X, Grand H, Halidfar R, Hamzaoui O, Jourdain M, Jost PH, Kipnis E, Large A, Lautrette A, Lesieur O, Maxime V, Mercier E, Mira JP, Monseau Y, Parmentier-Decrucq E, Rigaud JP, Rouget A, Santoli F, Simon G, Tamion F, Thieulot-Rolin N, Thirion M, Valade S, Vinatier I, Vioulac C, Bailly S, Timsit JF. The ICU-Diary study: prospective, multicenter comparative study of the impact of an ICU diary on the wellbeing of patients and families in French ICUs. Trials. 2017 Nov 15;18(1):542
• Schoeman T, Sundararajan K, Micik S, Sarada P, Edwards S, Poole A, Chapman M. The impact on new-onset stress and PTSD in relatives of critically ill patients explored by diaries study (The "INSPIRED" study). Aust Crit Care. 2017 Dec 15.
• Strandberg S, Vesterlund L, Engström Å. The contents of a patient diary and its significance for persons cared for in an ICU: A qualitative study. Intensive Crit Care Nurs. 2017 Dec 30.
• Mikkelsen G. The meaning of personal diaries to children and families in the paediatric intensive care unit: A qualitative study. Intensive Crit Care Nurs. 2018 Apr;45:25-30.
• Strandberg S, Vesterlund L, Engström Å. The contents of a patient diary and its significance for persons cared for in an ICU: A qualitative study. Intensive Crit Care Nurs. 2018 Apr;45:31-36
• Moi AL, Storli SL, Gjengedal E, Holme AN, Lind R, Eskerud R, Fenstad AM, Kvåle R, Halvorsen K. The provision of nurse-led follow-up at Norwegian intensive care units. J Clin Nurs. 2018 Apr 6.
• Scruth EA. Intensive Care Unit Diaries: The Importance of Exploring the Literature Before Implementation. Clin Nurse Spec. 2018 Mar/Apr;32(2):59-61
• Palombi di M, Boi S, Little A, Matarese M. The effectiveness of the patient's diary for the reduction of psychological disorders related to admission to intensive care. Systematic review of the literature. (Italian: L'efficacia del diario del paziente per la riduzione dei disturbi psicologici correlati al ricovero in terapia intensiva. Revisione sistematica della letteratura.) FNOPI 1 (2018).
• Åkerman E. Intensive Care Unit diaries: A critical appraisal. Intensive Crit Care Nurs. 2018 Aug;47:5-6
• Ewens BA, Hendricks JM, Sundin D. Surviving ICU: Stories of recovery. J Adv Nurs. 2018 Jul;74(7):1554-1563
• Nydahl P, Fischill M, Deffner T, Neudeck V, Heindl P. [Diaries for intensive care unit patients reduce the risk for psychological sequelae : Systematic literature review and meta-analysis]. Med Klin Intensivmed Notfmed. 2018 Jul 11.
• Kredentser MS, Blouw M, Marten N, Sareen J, Bienvenu OJ, Ryu J, Beatie BE, Logsetty S, Graff LA, Eggertson S, Sweatman S, Debroni B, Cianflone N, Arora RC, Zarychanski R, Olafson K. Preventing Posttraumatic Stress in ICU Survivors: A Single-Center Pilot Randomized Controlled Trial of ICU Diaries and Psychoeducation. Crit Care Med. 2018 Aug 16.
• Nielsen AH, Angel S, Egerod I, Hansen TB. The effect of diaries written by relatives for intensive care patients on posttraumatic stress (DRIP study): protocol for a randomized controlled trial and mixed methods study. BMC Nurs. 2018 Aug 16;17:37.
• Kennemar L. How ICU diaries can help patients and families. ICU Management & Practice 2018 (6). https://healthmanagement.org/c/icu/post/how-icu-diaries-can-help-patients-and-families
• Levine SA, Reilly KM, Nedder MM, Avery KR. The Patient's Perspective of the Intensive Care Unit Diary in the Cardiac Intensive Care Unit. Crit Care Nurse. 2018 Aug;38(4):28-36
• Åkerman E, Langius-Eklöf A. The impact of follow-up visits and diaries on patient outcome after discharge from intensive care: A descriptive and explorative study. Intensive Crit Care Nurs. 2018 Sep 18.
• Ascough L, Morrell-Scott N. An audit of completion of diaries for rehabilitation in an intensive care unit. Br J Nurs. 2018 Oct 4;27(18):1054-1058
• Druckenthaner M, Heindl P. (German) Application of ICU‐diaries by nurses of two Viennese Intensive Care Units – a quantitative document analysis. Klinische Pflegeforschung 2018, 4: 27‐38
• Ullman A, Kenardy J. Remembering the Unforgettable: Trialing ICU Diaries in North America. Crit Care Med. 2018 Dec;46(12):2048-2050
• McIlroy PA, King RS, Garrouste-Orgeas M, Tabah A, Ramanan M. The Effect of ICU Diaries on Psychological Outcomes and Quality of Life of Survivors of Critical Illness and Their Relatives: A Systematic Review and Meta-Analysis. Crit Care Med. 2018 Nov 13
• Pattison N, O'Gara G, Lucas C, Gull K, Thomas K, Dolan S. Filling the gaps: A mixed-methods study exploring the use of patient diaries in the critical care unit. Intensive Crit Care Nurs. 2018 Dec 18
• Herrup EA, Wieczorek B, Kudchadkar SR. Feasibility and Perceptions of PICU Diaries. Pediatr Crit Care Med. 2018 Nov 16.
• Johansson M, Wåhlin I, Magnusson L, Hanson E. Nursing staff's experiences of intensive care unit diaries: a qualitative study. Nurs Crit Care. 2019 Jan 24.
• Nielsen AH, Egerod I, Hansen TB, Angel S. Intensive care unit diaries: Developing a shared story strengthens relationships between critically ill patients and their relatives: A hermeneutic-phenomenological study. Int J Nurs Stud. 2019 Jan 26;92:90-96
• Nielsen AH, Angel S, Egerod I, Lund TH, Renberg M, Hansen TB. The effect of family-authored diaries on posttraumatic stress disorder in intensive care unit patients and their relatives: A randomised controlled trial (DRIP-study). Aust Crit Care. 2019 Feb 19
• Garrouste-Orgeas M, Flahault C, Vinatier I, Rigaud JP, Thieulot-Rolin N, Mercier E, Rouget A, Grand H, Lesieur O, Tamion F, Hamidfar R, Renault A, Parmentier-Decrucq E, Monseau Y, Argaud L, Bretonnière C, Lautrette A, Badié J, Boulet E, Floccard B, Forceville X, Kipnis E, Soufir L, Valade S, Bige N, Gaffinel A, Hamzaoui O, Simon G, Thirion M, Bouadma L, Large A, Mira JP, Amdjar-Badidi N, Jourdain M, Jost PH, Maxime V, Santoli F, Ruckly S, Vioulac C, Leborgne MA, Bellalou L, Fasse L, Misset B, Bailly S, Timsit JF. Effect of an ICU Diary on Posttraumatic Stress Disorder Symptoms Among Patients Receiving Mechanical Ventilation: A Randomized Clinical Trial. JAMA. 2019 Jul 16;322(3):229-239
• Lynch F, Endacott R, Latour JM. Patient diaries: Survey of paediatric intensive care units in the United Kingdom and Ireland. Nurs Crit Care. 2019 Oct 4
• Ascough L, Morrell-Scott N. An audit of completion of diaries for rehabilitation in an intensive care unit. Br J Nurs. 2018 Oct 4;27(18):1054-1058
• Barreto BB, Luz M, Rios MNO, Lopes AA, Gusmao-Flores D. The impact of intensive care unit diaries on patients' and relatives' outcomes: a systematic review and meta-analysis. Crit Care. 2019 Dec 16;23(1):411
• Costa VA, Padfield O, Elliott S, Hayden, P. (2019). Improving patient diary use in intensive care: A quality improvement report. Journal of the Intensive Care Society. 1-7. https://doi.org/10.1177/1751143719885295
• Kredentser M, Olafson K, Sareen J. Use of an ICU Diary and Patient Posttraumatic Stress Disorder Symptoms. JAMA. 2019 Nov 26;322(20):2025
• Garrouste-Orgeas M, Bailly S, Timsit JF. Use of an ICU Diary and Patient Posttraumatic Stress Disorder Symptoms-Reply. JAMA. 2019 Nov 26;322(20):2025-2026
• Tavares T, Camões J, Carvalho DR, Jacinto R, Vales CM, Gomes E. Assessment of patient satisfaction and preferences with an intensive care diary. Rev Bras Ter Intensiva. 2019 May 23;31(2):164-170
• Holme AN, Halvorsen K, Eskerud RS, Lind R, Storli SL, Gjengedal E, Moi AL. Nurses' experiences of ICU diaries following implementation of national recommendations for diaries in intensive care units: A quality improvement project. Intensive Crit Care Nurs. 2020 Mar 5:102828
• Castillo MI, Mitchell M, Davis C, Powell M, Le Brocque R, Ullman A, Wetzig K, Rattray J, Hull AM, Kenardy J, Aitken LM. Feasibility and acceptability of conducting a partially randomised controlled trial examining interventions to improve psychological health after discharge from the intensive care unit. Aust Crit Care. 2020 Feb 26
• Wang S, Xin HN, Chung Lim Vico C, Liao JH, Li SL, Xie NM, Hu RF. Effect of an ICU diary on psychiatric disorders, quality of life, and sleep quality among adult cardiac surgical ICU survivors: a randomized controlled trial. Crit Care. 2020 Mar 6;24(1):81
• Melby, A.C., Litler Moi, A., Gjengedal, E., 2020. The experiences of bereaved relatives on receiving the intensive care diaries of their loved ones. Nor. J. Clin. Nursing/ Sykepleien Forsk 15, 1–17. http://refhub.elsevier.com/S0964-3397(21)00110-5/h0190
• Üzar-Özçetin YS, Trenoweth S, Clark LL, Hext G, Tee S. Could therapeutic diaries support recovery in psychiatric intensivecare? British Journal of Mental Health Nursing. 2020.
• Torres L, Nelson F, West G. Original Research: Exploring the Effects of a Nurse-Initiated Diary Intervention on Post-Critical Care Posttraumatic Stress Disorder. Am J Nurs. 2020;120(5):24-33. doi:10.1097/01.NAJ.0000662804.81454.66
• Drumright K, Jones AC, Gervasio R, Hill C, Russell M, Boehm LM. Implementation of an Intensive Care Unit Diary Program at a Veterans Affairs Hospital. J Nurs Care Qual. 2020 Aug 18.
• Sayde GE, Stefanescu A, Conrad E, Nielsen N, Hammer R. Implementing an intensive care unit (ICU) diary program at a large academic medical center: Results from a randomized control trial evaluating psychological morbidity associated with critical illness. Gen Hosp Psychiatry. 2020 Jul 2;66:96-102
• Tripathy S, Acharya SP, Sahoo AK, Mitra JK, Goel K, Ahmad SR, Hansdah U. Intensive care unit (ICU) diaries and the experiences of patients' families: a grounded theory approach in a lower middle-income country (LMIC). J Patient Rep Outcomes. 2020 Jul 23;4(1):63
• Nakashima H, Gallegos C. Journal Writing by Families of Critically Ill Patients: An Integrative Review. Crit Care Nurse. 2020 Oct 1;40(5):26-37.
• Mickelson RS, Piras SE, Brown L, Carlile C, Drumright KS, Boehm L. The use and usefulness of ICU diaries to support family members of critically ill patients. J Crit Care. 2020 Oct 22;61:168-176
• Nielsen AH, Angel S, Egerod I. Effect of relatives' intensive care unit diaries on post traumatic stress in patients and relatives (DRIP-study): A mixed methods study. Intensive Crit Care Nurs. 2020 Oct 30:102951
• Nydahl P, Egerod I, Hosey MM, Needham DM, Jones C, Bienvenu OJJ. Report on the Third International Intensive Care Unit Diary Conference. Crit Care Nurse. 2020 Oct 1;40(5):e18-e25
• Rogan J, Zielke M, Drumright K, Boehm LM. Institutional Challenges and Solutions to Evidence-Based, Patient-Centered Practice: Implementing ICU Diaries. Crit Care Nurse. 2020 Oct 1;40(5):47-56
• Yoo HJ, Shim J. The Effect of a Multifaceted Family Participation Program in an Adult Cardiovascular Surgery ICU. Crit Care Med. 2020 Nov 11
• McCartney E. Intensive Care Unit Patient Diaries: A Review Evaluating Implementation and Feasibility. Crit Care Nurs Clin North Am. 2020
• Floris L, Madeddu A, Deiana V, Pasero D, Terragni P. The use of the ICU diary during the COVID-19 pandemic as a tool to enhance critically ill patient recovery. Minerva Anestesiol. 2021 Jan 12
• Nydahl P, Deffner T. Use of Diaries in Intensive Care Unit Delirium Patients: German Nursing Perspectives. Crit Care Nurs Clin North Am. 2021 Mar;33(1):37-46
• Brandao Barreto B, Luz M, Alves Valente do Amaral Lopes S, Goulart Rosa R, Gusmao-Flores D. Exploring Patients' Perceptions on ICU Diaries: A Systematic Review and Qualitative Data Synthesis. Crit Care Med. 2021 Apr 5. doi: 10.1097/CCM.0000000000005019
• Schofield R, Dibb B, Coles-Gale R, Jones CJ. The experience of relatives using intensive care diaries: A systematic review and qualitative synthesis. Int J Nurs Stud. 2021 Mar 19;119:103927
• Sansone V, Dall'Oglio I, Gesualdo F, Cancani F, Cecchetti C, Di Nardo M, Rossi A, De Ranieri C, Alvaro R, Tiozzo E, Gawronski O. Narrative diaries in pediatrics: A scoping review. J Pediatr Nurs. 2021 Feb 20:S0882-5963(21)00047-6. doi: 10.1016/j.pedn.2021.02.006
• Brandao Barreto B, Luz M, do Amaral Lopes SAV, Rosa RG, Gusmao-Flores D. Exploring family members' and health care professionals' perceptions on ICU diaries: a systematic review and qualitative data synthesis. Intensive Care Med. 2021 Jun 12. doi: 10.1007/s00134-021-06443-w
• Sun X, Huang D, Zeng F, Ye Q, Xiao H, Lv D, Zhao P, Cui X. Effect of intensive care unit diary on incidence of posttraumatic stress disorder, anxiety, and depression of adult intensive care unit survivors: A systematic review and meta-analysis. J Adv Nurs. 2021 Jul;77(7):2929-2941
• Alexandersen I, Haugdahl HS, Stjern B, Paulsby TE, Lund SB, Haugan G. 'I want to get back!' A qualitative study of long-term critically ill patients' inner strength and willpower: Back home after long-term intensive care. J Clin Nurs. 2021 May 20. doi: 10.1111/jocn.15812
• Flahault C, Trosdorf M, Sonrier M, Vioulac C, Fasse L, Timsit JF, Bailly S, Garrouste-Orgeas M. ICU Survivors Experience of ICU Diaries: An Ancillary Qualitative Analysis of the ICU Diary Study. Crit Care Explor. 2021 May 14;3(5):e0384
• Iannuzzi L, Villa S, Vimercati S, Villa M, Pisetti CF, Viganò G, Fumagalli R, Rona R, Lucchini A. Use of Intensive Care Unit Diary as an Integrated Tool in an Italian General Intensive Care Unit: A Mixed-Methods Pilot Study. Dimens Crit Care Nurs. 2021 Jul-Aug 01;40(4):248-256
• Negro A, Villa G, Zangrillo A, Rosa D, Manara DF. Diaries in intensive care units: An Italian qualitative study. Nurs Crit Care. 2021 May 30. doi: 10.1111/nicc.12668
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• Low SZQ, Kirk A, Mok YH, Lee JH. The Use and Impact of Diaries in PICUs and Neonatal ICUs: A Scoping Review. Pediatr Crit Care Med. 2023 Feb 1;24(2):e84-e90
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• Högvall LM, Egerod I, Herling SF, Rustøen T, Berntzen H. Finding the right words: A focus group investigation of nurses' experiences of writing diaries for intensive care patients with a poor prognosis. Aust Crit Care. 2023 Mar 16:S1036-7314(23)00029-2. doi: 10.1016/j.aucc.2023.02.002
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• Willmeroth T. Nurses' and Parents' View on Neonatal Intensive Care Unit Diaries: A Qualitative Study and Framework Conceptualization. Am J Perinatol. 2023 May 19. doi: 10.1055/s-0043-1768959
• Hu D, Ji X, Li Y, Liang Y, Chen J. Effect of intensive care unit diary on quality of life of intensive care unit survivors and their relatives: A systematic review and meta-analysis. Nurs Open. 2023 May 31. doi: 10.1002/nop2.1819
• Bosco V, Froio A, Mercuri C, Sansone V, Garofalo E, Bruni A, Guillari A, Bruno D, Talarico M, Mastrangelo H, Longhini F, Doldo P, Simeone S. The Impact of an Intensive Care Diary on the Psychological Well-Being of Patients and Their Family Members: Longitudinal Study Protocol. Healthcare (Basel). 2023 Sep 19;11(18):2583
• Cornelius T, Mendieta M, Cumella RM, Lopez Veneros D, Tincher IM, Agarwal S, Kronish I. Family-authored ICU diaries to reduce fear in patients experiencing a cardiac arrest (FAID fear): A pilot randomized controlled trial. PLoS One. 2023 Jul 27;18(7):e0288436.
• van Mol MMC, Tummers N, Leerentveld C, Tieben R, Buise M. The usability of a digital diary from the perspectives of intensive care patients' relatives: A pilot study. Nurs Crit Care. 2023 Oct 27
• Calzari S, Villa M, Mauro S, Mirto V, Bulloni P, Zini P, Deelen P, Grassellini PR, Bernasconi S, Cassina T. The intensive care unit diary as a valuable care tool: A qualitative study of patients' experiences. Intensive Crit Care Nurs. 2024 Feb;80:103558.
• Peschel E, Krotsetis S, Seidlein A-H, Nydahl P. Opening Pandora’s box by generating ICU diaries through artificial intelligence: A hypothetical study protocol. Intensive and Critical Care Nursing. 2024;82:103661.
• Muñoz-Rey MP, Delgado-Hito P, Juvé-Udina ME, Cuzco-Cabellos C, Huertas-Zurriaga A, Romero-García M. The diary in the intensive care unit: Concept analysis. Enfermería Intensiva (English ed.), 2024
• Daltveit S, Kleppe L, Petterteig MO, Moi AL. Photographs in burn patient diaries: A qualitative study of patients' and nurses' experiences. Intensive Crit Care Nurs. 2024 Jun;82:103619.
• Norton T, Chechel L, Sanchez C, Terterian G. A Qualitative Study to Explore the Nurses' Experience of Writing Caring Notes in Diaries for Extracorporeal Oxygenation Membrane (ECMO) Patients: Explore the nurse's experience. Crit Care Nurs Q. 2024 Jul-Sep 01;47(3):184-192
• Gundersen S, Blikstad-Løkkevik S, Brenna G, Steindal SA, Kvande ME. Critical care nurses' assessment of writing diaries for adult patients in the intensive care unit - A qualitative study. Aust Crit Care. 2024 Apr 15:S1036-7314(24)00052-3
• Johansson M, Wåhlin I, Magnusson L, Hanson E (2024) The use and application of intensive care unit diaries: An instrumental multiple case study. PLoS ONE 19(2): e0298538.
• Schol CMA, van Mol MMC, Berger E, Leerentveld C, Gommers DAMPJ, Ista E. Implementation of a digital diary in the intensive care unit; understanding the facilitators and barriers: A qualitative exploration. Aust Crit Care. 2024 May 7:S1036-7314(24)00075-4.
• Li X, Lin Y, Huang L, Lin H, Cheng X, Li S, Hu R, Liao J. Effects of web neonatal intensive care unit diaries on the mental health, quality of life, sleep quality, care ability, and hormone levels of parents of preterm infants in the neonatal intensive care unit: A randomized controlled trial. Intensive Crit Care Nurs. 2024 Aug;83:103697
• Willmeroth T. Nurses' and Parents' View on Neonatal Intensive Care Unit Diaries: A Qualitative Study and Framework Conceptualization. Am J Perinatol. 2024 May;41(S 01):e1800-e1812
• Högvall LM, Herling SF, Egerod I, Petosic A, Danielsen MER, Rüdiger U, Rustøen T, Berntzen H. The patient experience of a nurse-written ICU-diary intervention: A cross sectional survey. Intensive Crit Care Nurs. 2024 Oct 3;86:103846
• Exl MT, Lotzer L, Deffner T, Jeitziner MM, Nydahl P. Intensive care unit diaries-harmful or harmless: A systematic literature review and qualitative data synthesis. Aust Crit Care. 2024 Oct 9:S1036-7314(24)00257-1
• Peschel E, Krotsetis S, Nydahl P. Should we use artificial intelligence (AI) for writing ICU diaries? Yes! Intensive and Critical Care Nursing (2024) https://doi.org/10.1016/j.iccn.2024.103867
• Egerod I. Should we use artificial intelligence (AI) for writing ICU diaries? Not yet! Intensive and Critical Care Nursing (2024)
• Rossberg M, Janssens U, Kuzma J, Kuzma L, Pöss J. ICU diary: insights from a young couple. Eur Heart J Acute Cardiovasc Care. 2024 Oct 28;13(10):751-754.
• Li L, Pan X, Tong Q, Gao H, Yuan Y, Zhang X, Chen J, Chang Y, Zhang T, Hu R. Application of ICU electronic diary platform based on co-design concept in Chinese critically ill patients: a mixed methods study protocol. BMJ Open. 2024 Oct 29;14(10):e084924.
• Riegel M, Buckley T, Randall S. Family's preferences for and experiences of writing practices in adult intensive care and its use in early bereavement: A descriptive qualitative study. Aust Crit Care. 2024 Jul;37(4):614-620
• Bosco V, Mercuri C, Giordano V, Froio AM, Commisso D, Nocerino R, Guillari A, Rea T, Mastrangelo H, Uchmanowicz I, Simeone S. Enhancing ICU care with nurse-written diaries. Nurs Crit Care. 2024 Nov;29(6):1355-1362
• Huang W, Gao Y, Zhou L, Xiao X, Xu H, Lu L, Deng J, Wu J. Effects of ICU diaries on psychological disorders and sleep quality in critically ill patients and their family members: A systematic review and meta-analysis. Sleep Med. 2024 Oct;122:84-91. doi: 10.1016/j.sleep.2024.08.002
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• Villa M, Morale V, Valverde B, Andreossi M, Chinali I, Vigo V, Valentino A, Cesana M, Citterio S, Lucchini A. Exploring the Impact of ICU Diary on ICU Survivors' Emotions and Feelings: A Qualitative Study. Dimens Crit Care Nurs. 2025 Jan-Feb 01;44(1):20-27
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• Duffy N, Hickey L, Treyvaud K, Delany C. A study of the infant's lived experience of neonatal intensive care. Early Hum Dev. 2025 Jun;205:106254. doi: 10.1016/j.earlhumdev.2025.106254
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• Bäckman C, Johanson E, Walther SM: The intensive care diary can help the critically ill to cope with temporary memory loss and unpleasant recall. ESICM-meeting in Stockholm 1998
• Jones C, Capuzzo M, Flaatten H, Backman C, Rylander C, Griffiths RD (2009). INTENSIVE CARE DIARIES MAY REDUCE LATER SYMPTOMS OF POSTTRAUMATIC STRESS DISORDER. ESICM Annual Congress, Barcelona, Spain 24-27 September 2006
• Nydahl P, Knück D. Research about the ICU-diary in Germany. 5th international congress of the German sepsis society in Weimar Sept. 7-11 2011
• Treusacher L, Ansorge A, Dingwerth T, Papesch I, Orlikowsky T. EINFÜHRUNG EINES INTENSIVTAGEBUCHES BEI FRÜHGEBORENEN < 31. SSW (GERMAN). 37. Jahrestagung der Gesellschaft für Neonatologie und Pädiatrische Intensivmedizin am 26. - 28. Mai 2011 im Congress Center Rosengarten in Mannheim.
• Tung HT, Nordin N, Edginton T, Vizcaychipi M. (2015). Objective analysis of patient diaries used in an intensive care unit (ICU) in a London teaching hospital. Intensive Care Medicine Experimental 3(Suppl 1):A719
• Cabon S, Debue AS, Charpentier J, Asselie N, Brunie C, Ericher N, Grcia J, Gidel L, Lanclas H, Pileyre A, Mira JP, Pene F. (2015). Caregivers perception of the implementation of an ICU diary. Intensive Care Medicine Experimental 3(Suppl 1):A653
• Egerod I, Andersson AE, Fagerdahl A-M, Knudsen V. Experience of necrotizing soft tissue infection in the acute stage: content analysis of diaries written by close family in Denmark and Sweden (p-infect, family). Intensive Care Medicine Experimental 2016, 4(Suppl 1):A107
• Aitken LM, Rattray J, Kenardy J, Hull AM, Ullman A, Le Broque R, Mitchell M, Davis C, Macfarlane B. Similarities and differences in patients' and relatives' views of information provision after ICU. Intensive Care Medicine Experimental 2016, 4(Suppl 1):A810
• McCarthy, Mary; Mount, Cristin; Eccleston, Sarah: IMPROVING THE POST-INTENSIVE CARE SYNDROME PATIENT EXPERIENCE WITH AN ICU DIARY PROGRAM. Crit Care Med 2016 44 (12): 827
• Nedder, Melanie; Ryan-Avery, Kathleen; Reilly, Karen; Levine, Sharon. The Patient's Perspective of the Intensive Care Unit (ICU) Diary in the Cardiac ICU. AACN National Teaching Institute in Houston, Texas, May 22-25, 2017
• Van Mol M, Haakma T, Sleven B, Buise M. An exploration of nurses experiences with a digital diary in the adult intensive care unit. Nursing in Critical Care 2021 (26) S1: 12-13
• Di Ruscio C., Bigiarini B., De Luca A., Bucciardini L., Meucci B. Care and Caring. (Poster). Times and Tools of Connection in the Critical Care Area. The Diary. (2023) Link
• Bosco V, Mercuri C, Giordano V, Froio AM, Commisso D, Nocerino R, Guillari A, Rea T, Mastrangelo H, Uchmanowicz I, Simeone S. Enhancing ICU care with nurse-written diaries. Nurs Crit Care. 2024 Nov;29(6):1355-1362
• Kredentser MS, Reynolds K, Marten N, Blouw M, Sareen J, Olafson K. A Thematic Analysis of Intensive Care Unit Diaries Content. Nurs Crit Care. 2025 Jul;30(4):e70107. doi: 10.1111/nicc.70107
• Rose L, Welch A, Okelana K, Hassan F, Apps C, Brooks K, Law E, Slack A, Susser K, Meyer J. Implementation and sustainability of an innovative ICU e-diary. Intensive Crit Care Nurs. 2025 Nov 8;93:104266. doi: 10.1016/j.iccn.2025.104266
• Schol CMA, van Mol MMC, Ista E. Developing implementation strategies for digital ICU diaries targeting ICU professionals: an implementation mapping approach. Implement Sci Commun. 2025 Aug 7;6(1):85. doi: 10.1186/s43058-025-00767-0
• Zuo J, Li J, Cai L, Zhen H, Xu Y, Sun T, Ye X. The Effect of ICU Diaries on Psychological Outcomes and Quality of Life of Patients and Relatives: Overview of Systematic Reviews. J Clin Nurs. 2025 Nov;34(11):4899-4914. doi: 10.1111/jocn.17832.
• Genna C, Thekkan KR, Cancani F, Di Nardo M, Rossi A, Franci M, Satta T, Chiusolo F, De Ranieri C, Piga S, Tiozzo E, Dall'Oglio I, Cecchetti C, Gawronski O; PICU Diaries Study Group. The impact of the PICU diary on post-intensive care syndrome in children and their parents: A pilot randomized controlled trial. Intensive Crit Care Nurs. 2025 Aug 13;92:104190. doi: 10.1016/j.iccn.2025.104190

• (Local guideline) Easton, S. (2006): Patient diary guidelines. Sussex Critical Care Network. www.sussexcritcare.nhs.uk/profclinical/nurses/documents/patientdiaries.pdf
• Egerod, I. (2008). Klinisk vejledning for patientdagbøger i intensivafdelingen (Clinical guideline for patient diaries in ICU). UCSF www.fsaio.net, Copenhagen
• Storli SL, Eskerud RS, Gjengedal E, Holme AN, Synnevåg H (2011). Nasjonale anbefalinger for bruk av dagbok til pasienter ved norske intensivavdelinger (pdf) (National guidelines for the use of patient diaries in Norwegian Intensive Care Units).

• Guidelines with diary-recommendations
• Renner C, Jeitziner MM, Albert M, Brinkmann S, Diserens K, Dzialowski I, Heidler MD, Lück M, Nusser-Müller-Busch R, Sandor PS, Schäfer A, Scheffler B, Wallesch C, Zimmermann G, Nydahl P. Guideline on multimodal rehabilitation for patients with post-intensive care syndrome. Crit Care. 2023 Jul 31;27(1):30
• Haute Autorite de Sante (2023). Diagnosis and management of adults with post-intensive care syndrome (PICS) and their relatives.
• Hwang DY, Oczkowski SJW, Lewis K, Birriel B, Downar J, Farrier CE, Fiest KM, Gerritsen RT, Hart J, Hartog CS, Heras-La Calle G, Hope AA, Jennerich AL, Kentish-Barnes N, Kleinpell R, Kross EK, Marshall AP, Nydahl P, Peters T, Rosa RG, Scruth E, Sederstrom N, Stollings JL, Turnbull AE, Valley TS, Netzer G, Aslakson RA, Hopkins RO. Society of Critical Care Medicine Guidelines on Family-Centered Care for Adult ICUs: 2024. Crit Care Med. 2025 Feb 1;53(2):e459-e464

• Ridley S (ed). The psychological challenges of intensive care. Wiley-Blackwell, 2005
• Griffiths RD, Jones C (eds). Intensive Care Aftercare. Oxford: Butterworth-Heinemann 2002.
• Willis CB (2013). Lasting words. Brattleboro, Vermont: Green Writers Press
• Bienvenu OJ, Jones C and Hopkins RO. Psychological and cognitive impact of critical illness. Oxford University press: Oxford, New York 2017.
• Preiser JC, Herridge M, Azoulay E (2020). Post-Intensive Care Syndrome. Springer: Berlin. https://link.springer.com/book/10.1007/978-3-030-24250-3
• Haynes K, McPeake J, Sevin CM (ed) (2021) Improving Critical Care Survivorship. https://www.springer.com/gp/book/9783030686796